coping with reduced mobility - Fibromyalgia Acti...

Fibromyalgia Action UK

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coping with reduced mobility

OrangeFlame profile image
11 Replies

hello everyone

I hope all have had a manageable day.

I just wanted to see how many suffered are using mobility scooters. I was diagnosed with fibromyalgia 4 years ago and have declined quickly over the past year. My mobility has been affected badly and I struggle to just go out and walk around the supermarket and I am exhausted and frustrated about not being able to do the daily task. I would like to know if a mobility scooter has helped you carry out your daily tasks

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OrangeFlame profile image
OrangeFlame
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11 Replies
Debsdelight72 profile image
Debsdelight72

Hi OrangeFlame,

The idea of using a mobility scooter never crossed my mind, Now I'm a recluse apart from appointments I attend in my power chair, Since I find walking extremely painful and staying upright is an issue, Sciatica, back problems and a dodgy hip with chronic pain all add up to amongst other things chronic mental health (on and off 40 years)

If you feel you need a mobility scooter and you are thinking about getting one, Then do so, Before I stopped going out so much my chair was a great help to me and still is,

Ask at costumer service in the supermarket to use their shopping scooters to see if you will find it useful before purchasing your own,It's great if your supermarket is not too far away, We have a mobility van so no problems getting any where, If you have to travel on public transport you would be better off getting a power chair,You won't be able to get on with a scooter depending on size and a permit from your council to say your scooter will fit on the transport of choice,

I know this because I was a bus driver for 14 years,

So basically, It's, chair or scooter makes life easier when out and about,

Take care

Debs 😊

Giraffegreen profile image
Giraffegreen

Hi, I use a wheelchair usually but yesterday in my city centre I used a mobility scooter because the ground is lumpy and hilly and I can't use the chair so well. Honestly it was a game changer, I had a little cry because it was so useful, by no means perfect but I could do things I'd never normally be able to achieve. I say if you think it will help, then explore your options and do it, life is short so find a way to manage and enjoy it if you can

Fra22-57 profile image
Fra22-57

I bought one but struggled as I also have RA and it hurt my hands so much steering it.It is alright having a go of one in these mobility shops but actually using one on the pavements and trying to get in shops added to my problem.Some people get on very easy with them and a lot have these really big ones.Mine was only small so it could be dismantled by by husband and put in the car.I had to sell after a few months at a great loss. Enquire at a mobility shop and ask those who already have one.If a friend etc has one ask if you can try it first

Noodlenan profile image
Noodlenan

Hi

For everyone of us it’s trial and error. For me I’d be lost without my mobility scooter. I don’t use it all the time but if I know there’s a long walk ahead of me then it’s vital.

As others have suggested use the supermarket ones see how you get on. If you are able to get to a mobility shop they allow you to trial some within the shop to find one that suits you.

Hope you get sorted xx

Molliesmamma profile image
Molliesmamma

as others have said have a go at the supermarket ones- I have it’s great as I would not be able to get around the size of them otherwise. Also, some places have mobility centres which allow you to hire them for a few hours / days that may be a plan to let you see how you would get on out and about in the streets. Good luck to you 🙏

yoyo77 profile image
yoyo77

Hi Orange FlameI've used a power chair for the last 25 years and would be almost totally housebound without it. I consider it a friend as it enables me to walk my dog. .. a freedom I love. I live in a rural area and never go to shops or towns because of severe sensory overload. I am occasionally taken to hospital/dental appointments but it can take weeks for subsequent flare ups to settle. Life does shrink with Fibromyalgia but I think gradually we discover ways to adjust and become the new you. Mobility aids are there to assist, so why not use them to help your lifestyle... do the things you're able or want to do, and get out and about if you can.

Unfortunately for me, my dog now has cancer and I live on my own, so our walks will be coming to an end. Another big change to get used to....

Wishing you loads of good luck 👍 and more freedom ... 🥰 👨‍🦽‍➡️ 🥰

Hope you find what's right for you.... take care

OrangeFlame profile image
OrangeFlame in reply toyoyo77

Thank you yoyo77. I like the fact that you call it a friend. I’m so sorry to hear about your dog. It’s awful when a part of your family leaves this world.

As for me I still think I’m a little in denial about how much fibro is affecting me now I always push myself and then regret for the next few days.

Maybe I will now adapt a bit so I can do the things I used to enjoy.

Care rare and lots of hugs xx

yoyo77 profile image
yoyo77

Thanks for your kind words Orange Flame 🍊 xGoing round a supermarket is a LONG time on your feet, I remember how difficult I found it years ago. Always leaning on something and exhausted. Now I order groceries online and have it delivered, which is a real help.

Power chair is great! I can whizz round the block with my dog, ( or mooch along in the sunshine) post a letter, and maybe bump into neighbours for a little chat. Tired when I get home, but always glad I've been and know it does me good to get out. If it's cold, I sneak a hot water bottle under my coat. Even though we are all different, it's so good on here that everyone understands 🙏

Take care xx

Ollieooper profile image
Ollieooper

Hi orange flame ,

I would be lost without my scooter ! Don’t get me wrong it took me a while to get my head around the fact that I needed one , however the bottom line for me was I either stayed indoors or got out there and started to live again ., albeit in a different way .

I have a little foldable scooter and it’s fab . Just the right size for those shopping aisles 😁 For me it was a game changer definitely worth the investment. At 52 , i never thought i would be using one but hey ho .

The journey of accepting the new you is not a pleasant one , and personally I don’t think you ever do 100% . After saying that I’m a big believer in finding a positive out of a negative!

Hope this helps ,

Take care 😊

Rob172 profile image
Rob172

Hi orange flame, I dont own a power chair or scotter but I do use them sometimes at supermarkets and shopping centre's some places offer this service for free and run by local charities so small donations on the day helps their cause.

There is also a service online called Tramper hire that you can use on holiday in Wales and England they are all terrain scotters and they are based in national parks so you can get out and about and enjoy the countryside while on holiday or weekends away, I've used this service a few times now they even have a scooter that I booked at the Eden project 😀 I've added links.

Take care and all the best

Rob. X

countrysidemobility.org/

forestryengland.uk/activiti...

Elaine200756 profile image
Elaine200756

Aww, so sorry to hear that your illness has got worse over the past year. I've been house bound for 3 months and while I've never used a disability scooter It's been on my mind lately and I wondered if it would make a difference to me being able to get out and about without getting worse.I am blessed as my husband does all the shopping. If he wasn't here I would probably have to shop online. I wish you all the best in deciding what is the best way to go to help you make your life a little bit easier xx 🥰

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