Don't Know What to Do

[Kat791]

Hi all,

I have been trying to get help for 9 months. My pain started in my feet and pelvis(9 months ago), and slowly spread everywhere else. I have been on numerous waitlists, and am on several more. I was told it will be at least a year before I get a gynecologist appointment and 8 months before I will be assessed for the pain management group program(which I will probably be denied anyways because the doctor has decided, "it's probably not a viable option because of my autism and severe depression"). Pain management has not offered me any medication, treatments, or testing either. I've been referred to see an orthopedic surgeon because of my scoliosis, but god knows how long that waitlist for that will be. Meanwhile I am just left to suffer.

My mental health has gone down the drain, and the pain is terrible, particularly in my neck, shoulders, and back. In the last week even my breasts have started hurting. I honestly just want to die, so I don't have to suffer anymore. I have cried in front of multiple doctors, and been reduced to literally begging just to get help. No one in the NHS seems to give a shit. I honestly think they'd rather I'd just die, so they wouldn't have to pay for me or deal with me anymore. I just don't know what to do anymore.

I'm doing everything I can to help myself: stretching every day for 30+ minutes, walking everyday for 45+ minutes, trying different things like massage guns and lotions, trying to distract myself, but there is not much more I can do myself.

I don't drink or smoke(and never have). I'm not even the tiniest bit overweight. I try to eat a moderately healthy diet. So I don't think there's any major lifestyle changes I could make that would make a significant difference.

[Yassytina FMA UK Volunteer]

I feel for you as your eating healthy , doing some excercise, and walking (keep that up if you can )being outside is very positive , have you stuck with the same doctors surgery or ever changed too see a new GP , It’s horrid too feel this way and crying is our way of letting our emotions out, the pain stinks 😞have you a close relative who could come with you too an appointment, I have taking my best friend with me for a 2nd voice ,it’s like are you listening too her and what can be done too help improve day too day living. Xx