Fibromyalgia Poem 2

[Fibroguy66]

Some disabilities are invisibleInfact some cannot be seen

This evil fibromyalgia

Brings a new definition to mean.

Reading through the internet

To find the right medication

But no real positive answers

From any world location.

For our bodies are like an ocean

Each pain is like a wave

Surely I don't have to carry this

From the cradle to the grave.

So maybe it's the time

To open up your mind

And try to bare this agony

For in some pleasures we may find.

Stand up now to fibromyalgia

Stand up & be tall.

We are not just NHS numbers

Or another brick in the wall.

[DoubleMalibu]

So maybe it's the time

To open up your mind

And try to bare this agony.

I find this quite condescending, whilst your ‘poem’ words may apply in your life, they will not in a lot of members lives.

I was a teenager some 30+ years now, when I was diagnosed with these conditions, at a time when you were told you had the illness, but most medical professionals hadn’t been fully trained in the knowledge of them and some didn’t believe they existed.

Not only did I have to battle the debilitating conditions, but also the stigma of having something, very few people believed in at the time.

I forced myself to carve out what life I could, have a family etc & just get on as best I could. There was nothing on offer like pain management or prescribed drugs or CBT back then, like there is now. You were left to suffer in silence and find your own course of help. There was no internet either, which I feel these days looking back, may of been a blessing!

Your other poem line of

‘Cradle to the grave’..…really!

Didn’t know anyone was born suffering from fibromyalgia from birth🤷🏼‍♀️

Words matter, even in a poem!

[Fibroguy66 in reply to DoubleMalibu]

Genetics. Research has suggested genetics may play a small part in the development of fibromyalgia, with some people perhaps more likely than others to develop the condition because of their genes. If this is the case, genetics could explain why many people develop fibromyalgia after some sort of trigger.nhs.uk › conditions

Fibromyalgia - Causes - NHS

[DoubleMalibu in reply to Fibroguy66]

I’m well aware of that fact, but you don’t suffer with it from the cradle from birth.

[Fibroguy66]

Cradle to the grave.Not meaning birth but from it's beginning to our natural end.

Apologies for any upset 🙏🏻

Can fully understand your pain as I have it everyday.

Mine started back in 1996

When I was electrocuted by no fault of my own & in the process I was thrown a long way down a flight of concrete steps which smashed my lower spine to bits.

Had to have cpr to.

[marguLIS]

No judgement from me.

Anyone with fibro who reads about it or speaks to another sufferer knows how very individual it is. Humans can be so different in so many ways, medical conditions, mental health illnesses even the common cold are felt so personally, as is the way we deal with it.

Although I can't speak for anyone else who has fibro, I don't believe any one on this site would intentionally belittle how someone else feels or has experienced.

Expressing ones self in whatever form can be very cathartic. It is whatever helps you through it.

Bless you .

[KimiJay]

I write poetry but can't really write about fibro. Wish I could. Your rhymes got me. Drew me in... In the group I used to go to, crits were helpful even if a little unsteadying sometimes. More often useful. - I often re-write parts of my stuff - if - I get the time to write or go over old things I think I have completed.

The three lines that were raised into question might lead to a lot more to say about pain and showing it to the world. Suggest give it three weeks then work on that area some more. It's something I was told in a class and it is such good advice. Circumvents brainfog even and new inspiration can flow in. (It's that Muse in action!)

I think there is a need for a website dedicated to the poetry of all kinds of 'unseen' physical suffering, particularly. Fibro is a massively neglected area and still hardly spoken about and your closing lines spoke very well about that hopelessness. This poem's worth it and it does have a nice flow. The world needs to hear what this horrible condition has to say - through the ear canal and into whatever is the caring area of our grey matter.

[Fibroguy66 in reply to KimiJay]

Thankyou so much KimiJay for your lovely reply letter here 💕 .It's fairly easy as such to write poetry near on every issue that slams us or affects us on a daily basis.

I went to see a world renowned pain expert this week & sadly there is no known cure for fibromyalgia etc,which is ultimately sad news for me & other folk out there in the same boat.

He wants to try a new experimental thing on me but there again he is a leading pain consultant who travels the world.

I've agreed to being the guinea pig 😂 who knows I could come out of it like "Captain America"

I've nothing to lose as the pain already is like the living death.

My body physique is spot on but the internals have totally malfunctioned big time.

Take care & write when you can ok.

Kindest Regards

[e-mail]

[KimiJay in reply to Fibroguy66]

Hi Fibroguy. Excuse the delay in replying. I lost my first reply when the computer closed down for the night. Have been taken up with getting the garden and unbelievably disorganised house sorted after small utility room needed complete replastering and replumbing etc. Friends from far away landing in UK Tuesday and coming to stay next. - Hubs just cme in feeling unwell. Will reply online. KJ/Jo