exhausted

[Channy3]

Does anyone else get so overwhelmed by exhaustion just by doing the most simplest of things, I do, especially following a hot bath… makes me feel like I’ve done a workout! My body feels limp & lifeless after.

[golly123]

Yes. Sometimes I feel so exhausted such as today that I just can't keep my eyes open anymore. I just give in and go to bed. I don't seem to have a time zone anymore. Sometimes I feel so shattered I can't even be bothered to move. I would like a coffee right now (I live on my own) but it's just such a bloody effort. My house is the biggest tip ever. Its not a question of I can't be bothered at all. I just do not seem to have any energy. I hurt everywhere even my toes hurt, my ankles. I find all of this takes a lot of effort. Anyone feel the same?

[Channy3 in reply to golly123]

I know exactly how you feel…unlike yourself I have kids & animals thrown in the mix haha not that I would never change that, however along with other health issues, a house to run etc sometimes… well, quite often it feels like such an uphill battle. With what I have and the way I feel most of the time if I didn’t have my responsibilities pushing me/ forcing me along I’d just give up, I think….

[catherine19611 in reply to golly123]

you have just described me to a tee, i was so house proud and now i cant even do the simplest of things, i feel the same way after having a shower, it feels like i have run a marathon. like you i also live alone, it can take me 3 days just to hoover the living room

[golly123 in reply to catherine19611]

Yep. I know what you mean. I just do what I can. Have a good day. Best wishes Golly

[catherine19611 in reply to golly123]

thankyou sweetheart, you have a good day too

[Mystique23 in reply to golly123]

Constantly. I've learnt to just not beat myself up about state of my house or for needing to sleep. All that does is make it worse so I try hard to be chill about it all.

[Dizzytwo Moderator]

Hi Channy, yes that was and still is one of my biggest bugs to bear. Many of times my hubby literally as to get me out of the bad. Wrap me in a large bath towel and leave me on the bed to come round.

But after 40 yrs + of fibro I have learnt for me personally never to take a bath when I feel extremely tired or in a lot of pain.

I know for most people a warm bath is their first go to place for relief. But for me its almost like my oxygen as been sucked out of every muscle in my body.

I guess I have learned to listen to my body.

Momo

[Channy3 in reply to Dizzytwo]

I try and listen to my body as much as possible but tbh if I did I wouldn’t do much and having a nice soak is one of life’s little pleasures (for me) but yet even that is becoming just another daunting task…

[emoor528]

hi yes I get very tired from doing the simplest of things. I am learning to pace myself.

[Meditationlover]

Hi, yes. I am exhausted all the time, have to have a sleep 😴 during the day, even when I'm on holiday, hardly work now because of it, only do 2 days, 6 hours. Even if I'm having low levels of pain, I'm still extremely fatigued

[Channy3]

It’s very frustrating, I have to take regular naps throughout the day to boost myself but I am also anaemic, have an under active thyroid, abdominal adhesions with possible endometriosis and osteoarthritis as well as fibromyalgia… I had to pack up working a year & a half ago. I take a lot of meds so I can’t be too surprised I get tired but I feel quite lost most days, like I have no purpose ☹️

[Ladame]

All I can say is, I'm glad it's not just me! I empathize. Best wishes for better days 🙏

[Channy3 in reply to Ladame]

Yea I’m with u there… it’s not nice to know people are suffering but it is nice to know that we’re not alone in these struggles x

[Greyt]

yes I do , one minute fine and then a huge wave of exhaustion comes over me . It is overwhelming and makes me very anxious so I do breathing exercises to get over it .

[Rubydooby22]

Yes that's me! I feel so tired all the time, even when I've just got out of bed! My husband doesn't understand, but he does do a lot to help me round the house.I tend to do one job then sit down for 20mins or so to rest and recharge ready for the next job. Sometimes I'd like to be able to recharge myself like a mobile phone. Wouldn't that be good!

Gentle hugs for everyone x

[Hazel_Angelstar Administrator FMA UK Staff]

Yes, having a shower wipes me out. I now only have one in the evening, when I don't need to do anything more than put on pj's and get into bed

[Oyka]

Yes, unfortunately most of the days.Sometimes I only remove the dishes from the dishwasher and I have to rest for hours.

[Luckylady1978]

yea I do I get this unbearable tiredness early evening and I just can’t wait to go to bed !

[Channy3 in reply to Luckylady1978]

same, it’s the best time of day for me!

[moskin]

hello

I feel exactly like you,so exhausted,I cannot even get dressed without rest between.I have had PMR for 9 years,now on 3.5 prednisone,my GP wanting me to reduce,not sure if this is wise as so exhausted.I live alone,I have to have a cleaner and someone to do the ironing.Like you I hurt everywhere.Irest a great deal and No energy for anything.If it’s any consolation it might help that we are not alone .PMR,Fibromyalgia,just such difficult conditions.Take care

[1whitestar]

I have this a really bad flare up can not walk well having to use aids to get up tue stairs. I do get down about this.

[Channy3]

It feels like such a lonely experience especially when people even loved one’s think you’re being lazy… which I have never been. Thank u all for ur kind words & support x

[Albionrfx]

Hi Channy3,

Thank you for opening up to us by sharing your struggles. I was sad for you but also felt relieved that I was not alone. I too feel exhausted after having a shower, then I have to rest for half an hour. I empty the dishwasher then I just want to return to bed. Making something to eat feels like the most difficult task there is. I used to like having friends around for a meal or going out with friends and family but honestly in the last seven years, I have not been capable to do so. Part of me misses it but realistically I cannot cope entertaining friends and family much... I feel that I’m just surviving each passing day! However I try hard to keep my mind strong and positive otherwise I will sink down into a major depression. I don’t always succeed but I keep trying. I wish you and everyone in this group joy and above all courage and strength to face the challenges of Fibromyalgia and other health issues.

Warm regards, 🦋

[moskin in reply to Albionrfx]

Hi

I feel exactly the same as you,it’s given me hope to know I am not alone , take care

[Debsdelight72]

I put a terry toweling dressing gown on and a towel on my head then collapse on my bed for an hour then myself and my hubby take turns to brush my hair (my arms just do not stay up long enough.

I have long very thick hair, (might have to get it cut right back, just like my wisteria,At other times I feel exhausted trying to sleep and wake up, Others will know exactly what I mean,

Sleep alludes me, I stack all my pillows up and around me so i can sleep sat up and put the tv on timer and hope for the best

Take care

Debs

[Channy3 in reply to Debsdelight72]

That’s lovely that your husband takes turns brushing your hair ♥️

[Debsdelight72 in reply to Channy3]

Oh Channy3,

My Hubby is my rock,He does pretty much everything, apart from the toilet needs,

I refuse to give up when it comes to wiping my butt Bless him,He should be resting as he gets very sick too,I feel so guilty sometimes, Lucky we love each other so much otherwise we wouldn't be who we are

take care

[Channy3 in reply to Debsdelight72]

ur both very lucky to half one another, I’m glad that u do ♥️

[Debsdelight72 in reply to Channy3]

Thank you, I don't think I would be alive if it wasn't for him coming into my life,

We knew each other for 2 years and lived in a house share,We started dating in Jan 05 and married in May 06, We are so blessed to have each other,

[Cotswolds25121]

hi, nowadays I just sit when I get out of the bath, towel around me as I don’t have any energy to dry myself. So now I don’t try, I’m embarrassed to say that I also now don’t have a bath every day because the thought of it makes me feel it’s too much of a drain on my body, so I have a wash with a flannel whilst sitting on the toilet 🙄I’m only 62 and it makes me feel pathetic but then I realise if that’s the way I’ve got to do it then so be it. X

[Debsdelight72 in reply to Cotswolds25121]

You are not alone on that one Cotswolds25121, I was surposed to have a carer watch and help with bathing,

I said I'm not having someone to watch me in the bath!My Hubby hasn't seen me naked for over 4 years, So I'm not letting a stranger see me, We are waiting for the O.T to see if they can help with a grant for a wider front door for my scooter and power chair, so I can get them out side without assistance and a walk in shower, Trouble with the bathroom is the ceiling is far too low, I don't have to stretch to paint it, If not we will be moving.

Oh and I'm only 51 in August so try not to be too down trodden

Take care

[Channy3]

I know exactly what u mean and I don’t think our ages are even relevant anymore because I have many days like that and I’ve only just turned forty ☹️ … it seems to rob everyone of their essence, if u know what I mean x

[Polly-S]

I had long hair, till under the waist. Kept it this length for almost 30 years. But cut it down 2 years ago because can not brush it and at the time even my scalp was painful to thatch. Cut it shoulder length. By myself, with the office scissors... kept crying doing it, but such a relief afterwards... Now, my hubby is cutting it off every 4-5 months .Bath - used to love taking bath, have boxes of bath bombs and salts unopened because can't have a bath anymore, the getting out of the bath is leaving me with a flare up for days.

Shower - my hubby has to help me, can't clean my hair at all. My PT advised me to check for bath seat and now it is easier - check it online and choose the one that is right for you.

Also, sometimes shower hurts...

And getting out - another painful experience.

Have to rest for at least an hour after and then to dress - pyjamas again

Overall, if you don't feel comfortable, just a sponge bath is better.