Hi all, just wanted to ask if this heat affects anyone's Fibromyalgia symptoms as in increasing pain levels?It seems to make my pain levels worse! I unfortunately for some years now cannot withstand the heat and it actually makes me feel so poorly (on top of my fibromyalgia symptoms so not helpful obviously!
I was born in September so that's my ideal temperature warm and sunny but below the 70s Fahrenheit
with a lovely sea breeze (I live near the beach).....once it tips over that I immediately feel so unwell and have felt this way for years.
Any other lovely members experiences would be really helpful to hear.
Thank you
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Seascapes31
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Yes, I'm afraid it's the same for me. I overheat and can't cool down and the sweating is awful. Pain levels definitely increase and extra pain relief doesn't seem to make one bit of difference.
I think my ideal temperature is pretty cold, but even then I still overheat. If I was a boiler I would be condemned for a dodgy thermostat 😳
"What doesn't kill us makes us stronger?"
Well, whoever said that has obviously never met fibromyalgia because right now I feel about as weak as dishwater 😔
Hang in there Seascapes this heat won't last much longer - Surely ☔🌧️☔🙏
Aw no! Just when you think it can't get any worse 😔
So far I've been lucky, I've remained upright but I've had that horrible feeling like you're going to pass out and then the gadzy sicky feeling is just an absolute joy! 🤮
I’m definitely the same. I really struggle in the heat. I find I can cope and stay on top largely of my pain and chronic migraines when it’s cooler add hot temperatures and I really feel overwhelmed.
hi there like me also born in September I can’t say I noticed the heat making it worse because my pain is same all year around but it’s getting worse generally as time goes by, it’s hard to believe it can get any worse, fibromyalgia is really crippling for some people It has drastically changed and taken over my life, my life can’t do any of the things I normally did pain pain pain and pain that’s all my life has been for years now, I’m a full time carer for my elderly bed bound mum so you can imagine how hard that is anyway I hope things become easy for you and all my fellow fibromyalgia sufferers
I'm right there with you,I hate to moan but this heat is killing me😞
My pain levels are through the roof, I cannot cool down, it's making me vomit and dizzy.🥵🤢
I'm literally sat in the house as it's very cool in there and can't go out,
The down side of my house is I can't stand the cold either 🙄🥶 and also have excruciating pain then and my bungalow is so hard to heat, I was definitely made wrong🙃
Hello, we didn’t really have a Spring here in Suffolk and up until last Tuesday temperatures were fairly low, then at the weekend it went up too 29 degrees 🤣I do tend too slow up with the heat and feel more tired im sure a lot of us do and drink plenty of fluids and pace much more. Sorry to read it makes your pain levels a lot worse. Must be marvellous living near a beach I would be dipping my toes in for sure too cool down, take it easy xx
Although the beach is close by I don't get down there often due to my pain levels and mobility, agree that toes in the water would be so refreshing for sure!
Must be very hard for you and such a shame we miss out on things, it’s currently 27degrees where I live , i think my little grandboys will be very tired after school, my husband will get them and I save some energy for when they come Chilled drinks and ice pops I think they are 9 and 6 years old . Always lift me and take my mind off pain/fatigue whilst they are here 😀
Bless you, I get so much joy from my grandchildren too, and I do feel sad that there's so much I can't do with them, and like you I have to conserve my energy for my time with them.
I do agree I feel I miss out on so much because of my fibromyalgia symptoms x
My mother who had fibro as well as RA always found summers worse, although she was a sunlover when she was younger.
By a process of elimination, we discovered that she was eating more "nightshade plants" in the summer as she had more salads. New potatoes, peppers and tomatoes were particuarly bothersome, which was a shame as they formed a good part of her diet.
If you google nightshade vegetables it will give you a full list.
The same was true with strawberries, although sometimes she used to say she would put up with the extra stiffness and pain just for the enjoyment of her "treat"
She would sit in the shade with her feet in a large bowl of cool water, which sometimes had to be replenished. This did help her with the sweating.
She was well into her late seventies before her "hot flushes" finally stabilised.
Hiya seascapes, I find heat makes me feel much better, pain reduces considerably, when cold I use heated pillow, heated blanket, and weighted blanket all year round. But I am aware some people find heat doesn't help them
I’m exactly the same as you, I’ve been feeling totally overwhelmed with the heatwave & I dare anyone 🫣in our household to open a single blind or curtain & let the heat in!
I no longer seem able to deal with high or low temperatures, this ‘lump’ of a useless body I drag around the best I can, cannot adapt to the change in weather anymore.
Like you I’d say Sept Oct & April May are my most comfortable months.
I’ve got a can of face cooling spray & it does help a bit especially, at night in bed.
Unfortunately I have had a lot more stiffness and pain especially in my hands and feet so am staying in the shade keeping my feet elevated. I loved the sun but my body clearly doesn't. Feeling a lot more drained also. Went on holiday to Tunisia few months ago and was fine for most of it until my feet gave in and where in agony for the second half of the hol. Not experienced anything like it before. I used to look forward to summer and the sun. Now I have to hide from it. At least I managed to get a good tan before it all kicked in.
me too! my best time of year is October to april as its cool or cold. Anything above 17c and i am struggling even more. My body thermostat is broken too , i have fibro & lupus so it is important i protect myself from the sunlight. i am also menopausal so hot flushes added to the mix, it feels like will combust the amount of heat i feel! lol. i have to laugh or i will never stop crying. But yes, the heat makes me sick, dizzy, confused......endless list. sending you a gentle hug x
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