Persistence : After weekly visits to my... - Fibromyalgia Acti...

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Persistence

Bolognese2022 profile image
6 Replies

After weekly visits to my GP’s for months with one symptom after another and lots of test and scan’s completed, without any firm diagnosis, success! They completed a blood test (advised by my dentist)and the test showed I have a low cortisol level. I am being referred to an Endocrinologist to get a diagnosis. I knew something was wrong and persisted visiting medical personnel until I got an answer.

At least now I feel I am believed by professionals and my family, who seemed a bit fed up with my constant moaning and complaints.

I am also due to visit the pain clinic this week, I hope this time I will get help with pain management, last time the muscular skeletal professional sent me away saying he could not help me! Hopefully they can this time.

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Bolognese2022 profile image
Bolognese2022
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rosewine profile image
rosewine

Wonderful news glad you are getting some answers at last. Let us know how you get on with the Pain Management, hopefully, better than I am. I am supposed to be having six sessions of hydrotherapy, one session each week. I had the first two and felt a bit of improvement. They supposedly have been having problems with the pool and have now cancelled the third session 4 times. I am due to go this afternoon but they have cancelled one session 5 minutes before I was scheduled to set out so until I get to the hospital and actually get in the water I won't believe my third session is starting. It has been so long that I have forgotten the exact way to do all the exercises I was shown so will be like a beginner again instead of being able to just get in the pool and start on my own. Murphy's law just when there was something helping.

Let us know how you get on.x

Bolognese2022 profile image
Bolognese2022 in reply to rosewine

I did belong to a gym and they had a small pool that was really warm, with beds to line in the water in the pool, there were water fountains, it was wonderful ! Alas it closed😢 The nearest one now is miles away and expensive.

I will let you know what happens.

rosewine profile image
rosewine in reply to Bolognese2022

What a shame it closed. A new leisure centre that would be all singing all dancing had been promised by our local council for about 20 years. You guessed it the moment we moved they said they were building it and the site was 10 minutes walk from where we used to live.I managed to get my hydrotherapy. This time it was a lady physio and she gave me two different exercises to before and I could really feel them stretching my back muscles. It was good as another lady I hadn't met before had similar problems so was given the same exercises so we did them together and had a lovely natter. The nee physio also bad us just walking slowly I the warm wardrobe for 5 minutes before we did the exercises which allowed our bodies to loosen up fingers crossed she is there next week. Rather stiff and very tired but feel much better than expected.

Fingers crossed for your Pain Management.x

Bolognese2022 profile image
Bolognese2022 in reply to rosewine

Hi Rosewine

You asked me to let you know how I got on at the pain clinic. I had been sent to MCATS/pain clinic.

My heart sank when I realised the male who was due to see me was the same person I had seen twice at my doctors surgery, for cervical spondylosis. On both occasions I saw him I was sent away after being told there was nothing he could do for me.

Fortunately he was not in the same role and proved to be really good once we had cleared the air regarding my two last appointments. He sensed I hadn't been impressed!

I thought I had a diagnosis for fibromyalgia from my GP, alas not! My GP wanted further advice to confirmed I had Fibromyalgia, which he confirmed I did. Great I thought now I can get further help with pain relief, alas not. He advised he can not diagnose me given I was awaiting a referral to an Endocrinologists to see if I had Addison's disease. As both have many similar symptoms I have to wait to be seen by an Endocrinologist.

He apologised that he was yet again sending me away without any help but this time it isn't his fault the wait is over to the NHS waiting times. I imagine it will be a long wait!

rosewine profile image
rosewine in reply to Bolognese2022

I was hoping you would have some answers. Strangely enough the first time I had hydrotherapy 7 years back I got talking to a lady who was there because of a botched shoulder operation. She asked me why I was there and I said fibro and osteoarthritis and she said initially they had thought she had fibro until further tests and investigations proved it to be Addison's disease. She said some of the symptoms were very similar, such as the fatigue, headaches, dizziness and muscle cramps but her other symptoms had been completely different. She was lucky that she had private medical insurance so she was seen very quickly. I suppose it is a matter of waiting, do hope you get an appointment soon and can at last get a proper diagnosis.x

Yassytina profile image
YassytinaFMA UK Volunteer

Glad too hear you got some answers and I hope the visit too the pain clinic goes better this time x

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