Answers: Hi there, I've recently been... - Fibromyalgia Acti...

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DancingMama profile image
4 Replies

Hi there, I've recently been diagnosed with scoliosis,I noticed myself bending last year, hence had to give up work, it was the R.A. Nurse who told me I had it in our conversation at the beginning of this year, it's horrid, I am getting fed up with being told I've got something else wrong with me.

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DancingMama profile image
DancingMama
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Dizzytwo profile image
DizzytwoModerator

Sorry to hear this. I also have it slightly along with other spinal issues. I am guessing you was x rayed or scanned to allow the nurse to give you that kind of diagnoses.

Some people don't have any pain with it so I was told when I saw the specialist. But I'm guessing it depends on how severe the scoliosis is xx

Momo

DancingMama profile image
DancingMama in reply to Dizzytwo

I was advised to see the physiotherapist, she showed me my latest x-ray of my back & it's definitely curved to the left.She advised me to go to the local Hydrotherapy pool for 10 weekly sessions to see if it helps with the pain.

I have noticed though that when out walking I gets chest pains, which I know can come from the chest being compressed, I'm worried it's my heart.

I just realised also that the Methotrexate they put me on is making me allergic to the sun, I am a sun worshiper 🥰

But can't sit out without being covered up.

Hope your well.

Tricia x

E3178 profile image
E3178

I have had scoliosis since a teenager and had to wear a steel corset for two years which was very uncomfortable and did nothing for me.Dancing was my life along with sports but due to the pain ,had to pull back.

I have found the only thing that helps is movement. I do yoga, tai chi and walk.

I am lopsided and one leg is shorter than the other so I always have to alter the hem on any trousers, jeans etc.,

I have extra pain in one hip which juts out along with general pain in my spine.

I dress carefully so people don't notice.

I have had this now for 65yrs and have learned to live with it along with fibro so you can live with it if you keep moving.

DancingMama profile image
DancingMama in reply to E3178

I'm sorry to hear that E3178, I have decided to merely walk or meander as I like to call it, I go as slowly as I need to.

I'm just taking it a day at a time.

Thank you for replying.

Tricia x.

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