I know the heading of my post may seem a strange one or even controversial but let me try and explain it a bit better.😜
I'm really interested to find out how others felt when they were given their diagnosis.
From my own personal experience it took a good 8 years to finally get my diagnosis, there were many times that I questioned if what I was experiencing was really happening or was it just in my head along with just getting older even though I had always referred to it as some kind of nerve pain, many blood tests came back ok, x-rays showed a little rheumatoid but not much else was coming up so I just kept on taking various meds and living with the pain.🙄
I had a discussion one evening with a few girlfriends and they asked me how would I feel if I ever got a diagnosis and it got me thinking.......Would I feel happy that I finally knew what was causing it? Or would it consume my whole life and all I would focus on was that?
Now I have that diagnosis I can confirm that it has not consumed me, I feel that I now know It's not in my head and what I experience is real and has a name but at the same time I'm interested in other people's experiences, what helps others and the various things others find helpful.
Oh and humour ....don't ever let it take that away from any of you...🤣👍😂