fibromyalgia
Hi
I was diagnosed with fibromyalgia last month. Pins and needles are becoming more frequent in my hands and scalp and sometimes I feel I am losing my grip. I feel wiped out and exhausted to the point when I’m off work I just end up sleeping all day. Pains in fingers are awful. I am waiting to go to physio to help to manage the pain. There is a 2 month waiting list.
does anybody else feel the same. Exhausted and pin and needles more frequent ?
thanks
Karen
Sorry to hear that Kazzza, no one knows what this beast is like, it’s multifaceted. I cannot comprehend the amount of symptoms I get and the one you described. Sometimes I like to go to Switzerland 🇨🇭 for an injection that ends your life without even realising it but can’t afford.
I hope the physio works for you. I have done loads, the best one is hydrotherapy.
Wishing you better xx
Thankyou for taking the time to reply. And Thankyou for your get better wishes. Can I please ask what hydrotherapy is ? X
Hydrotherapy is exercise done in a warm water pool
Thanks Hazel I will look intoIt
You are welcome, hydrotherapy is a gentle physio in a warm pool. It’s really good xx
How are u feeling painny message me anytime xxx
Hi and a warm welcome to the forums. You can find general information on fibromyalgia at our website fmauk.org and our patient information booklets at fmauk.org/publications
When first diagnosed it can be difficult finding a treatments which help best for you, and can be trial and error to. Also finding the balance that allows you to be active /live your life and pace enough that you don't push yourself too far into a flare up
Have you had your B12 levels checked and your Iron Overload Bloods? Would be interesting to know what your levels are? Your GP can do them
Yes I have had them checked they are all fine
That's good to know.
The pin pricks I used to get all over my body its horrendous I now get them in hands and feet even face its to do with our nerves over fireing x
I get them more so in my hands. And pain in my fingers and sometimes feel I’m losing my grip. Thanks for your reply x
the absolute best thing I have ever done wrt pain in my hands is to give up diet coke and everything else with artificial sweeteners in. Pain disappeared within 48 hours. Worth a try?
Oh! Perhaps that's why fibromyalgia is no longer my biggest source of pain.
Thankyou I will try this
Hi Karen,I am the same pin & needles in fingers & feet that come & go through out the day & night & always Exhausted more in this hot weather. I try & have a soak in a warm bath that usually helps. John.
Thankyou for the reply John I will try that. Thankyou
Hello kazzza1976, I sympathise with you I have pins and needles in my fingers and hands in my legs and my hips I have terrible pain in my back I can only describe it like toothache only worse. I suspect it’s nerve pain and I’m also waiting for a physio appointment I sometimes struggle to walk it’s so painful at one point I thought I was dying. I’m in my late 60’s but this has been coming on gradually for many years. I have been diagnosed with fibromyalgia, chronic pain and have rheumatism in my left hand. I hope that some day soon the research team find something to help us. My best wishes to you. X
Thankyou for your reply. The consultant thinks I have had this since 2017 after my accident. I had these symptoms in 2017 but because my bloods was normal no further investigations was completed. When I have read up about fibromyalgia it says this is not progressive , it feels like it is as my symptoms have gone a lot worse since 2017 , ie . Pins and needles a lot more frequently and the exhaustion and pain. I also hope the research team can do something to help. Best wishes to you x
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