Living with Fibromyalgia

[mishjas01]

Good day. Its great hearing that I'm not the only one living with this awful condition. Some days I feel normal and the next useless. What happened?! I was always happy to be busy and take on jobs. Help at school. A business woman. Ran my own home bakery. My children are still young and need their mom to be there and busy organising their lives and our home and social life. However at times I just can't.... I'm tired all tired most days and in pain everyday. I'm feeling better in myself as I've reduced alot of the nasty meds. Thanks to magnesium & CBD with increased THC. This has changed my life. So now I have increased energy, great sleep, and my mental wellbeing about my condition is better. Then I get the bad days...pain radiating down my arms and legs. Brain fog.... makes me feel stupid. It would be great not to have all these issues. I can't even work as this condition is so unpredictable. At times I get a particular pain sonewhere like my leg...for no reason?! And I can't walk! Then migraines. Heart races for not reason. Hand pain.... etc It's not easy... Many times I feel like a fraud.... as its so unreal and does not make sense! I HAVE NO CONTROL in how my day is going to be... Today is a bad day, tomorrow will be better ❤️

[Fadeddenimcutoff]

I know how you feel, I have stopped as many 'nasty tablets' as I can and am working through this dreadfully illness with methods that help me get through one day at a time. Breathing exercises, cold water showers, as much exercises as i can manage, reduce stress, meditation. All these help but I never get free and have too many bad days.

[Themanwithnoname]

I believe you as i can relate to somethings that i say that just dont make sense as to why somethings cause unbearable pain and others dont. Yet to those who dont have fibro they are the same. Your no fraud. Fibro is pure evil and we are always battaling away. Take the small wins

👍

[Yassytina FMA UK Volunteer]

Hi there, yep no control over over this condition but going with your flow ,I too give up working partime as just became unreliable, so I always take each day as it comes now, very hard especially with a young family for sure, your not a fraud at all and if family /friends read up how this condition can be they would totally understand. So I do hope you have some support and empathy, good to talk here sometimes and read posts as so many thousands have fibro and I do get some comfort knowing there’s always someone too listen here on the forum xx

[Lia06]

Only people suffering from this same condition can understand others simply can’t I’m the exact same most days can’t get out of bed other rare days I’m not too bad, drs won’t do anything more than give me pregabalin. I have an elderly mum to look after as well which makes it even harder There’s a petition I’d like to share but don’t know how to on this page, it’s regarding paying for ongoing prescriptions for this illness I mean why do we have to it’s an incurable disease, people with diabetes have exemption from paying for 5 years at a time along with every medication they need regardless of what it’s for, how is that fair!

Please let me know how I can share my petition to this group if you know thank you

[mishjas01]

Thank you all for your kind words. It's good to know you all out here to chat too. My husband is super supportive, but I worry his having to take on too much. He has a full time job and that comes with stress and hard work too. Thank goodness we live in Wales, I don't pay for prescriptions. It's so wrong to pay for prescriptions in England. Take care all .... wishing you many more good days 💗