PNES

[CopingwithEx]

Does anyone experience non epilepsy seizures? It’s only been happening since my Fibro diagnosis and feels like being trapped inside my own head with anxiety/electric feeling. I haven’t been tested for epilepsy but I have had a brain mri and ct scan in the past year that was normal. I don’t convulse or pass out or anything it just feels psychological. I’ve had panic attacks/anxiety for 11 years but these episodes are different. Maybe it is just anxiety manifesting into something new, Maybe it’s my cns being on overdrive cause my pupils dilate too, who knows! I’m never surprised with the endless list of symptoms🥲

[Dizzytwo Moderator]

I personally Have never heard of seizures been part of fibro. I think you need to see your GP if only to update them on what is happening xx

[Painny]

I suffer from non epileptic seizures caused by a combination of factors especially when I overdo things. My brain seizes up to the point that I just drop and not receptive to anything.

Today I walked a bit to get my booster jab, got the jab but soon after I could not stop sobbing, my brain and body just got exhausted.

I’m going to google your question to see if this type of seizures are related to fibromyalgia.

I hope you get get some rest tonight. When it happens to me I just drop in my bed, but if it happens outside home, I’m a mess as if I have taken tons of drugs xx

[Lovelyhols]

Hi, I was diagnosed 4years ago with NEAD, (non epileptic attack disorder ). I was having full blown seizures that lasted anything from a few minutes to over 30 minutes. I was also diagnosed the same day with FND, (functional neurological disorder) so it’s maybe worthwhile getting in contact with your GP to arrange a consultation with a neurologist. I have also been diagnosed with fibromyalgia 7years ago.

[CopingwithEx in reply to Lovelyhols]

I’ve been back and forth at my gp with no moving forward. All blood tests and brain mri/endoscopy/ultrasounds all come back clear!! I’m demented cause it feels like there’s a parasite leached to my brain but again had a CT brain scan in august and was fine! 😭

[fern21h]

Oh my goodness, this is exactly what has been happening to me. My bloods show high white cells. Doctor hasn't a clue what is going on. Not good x

[CopingwithEx in reply to fern21h]

Aw I’m sorry! All my tests come back clear I had a full blood work and brain CT and urine tests done in hospital in august and everything was perfect! I really struggle to explain it. It’s like a horrendous mix of Fibro fog and severe mental issues!! It’s like my brain can’t work properly when I’ve overdone it. I can’t think or talk. My mind is racing thoughts but feels very slow. I feel sparks of anxiety or something in my brain. Sorry to hear you’re suffering too!!