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need a little advice.

lanzarote55 profile image
7 Replies

good morning to everyone, im a newie, just been diagnosed with fibromialga ,im dixlexic as well as pardon with spelling, im struggeling with pain , i cant take any pain releif, i feel like ive been dragged through a hedge backwards, find it hard to cope . what should i eat or not eat.

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lanzarote55 profile image
lanzarote55
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7 Replies
Dizzytwo profile image
Dizzytwo

Hi there and welcome to our group. I have had fibro for 40 yrs and there is no specific diet or foods for fibro I'm afraid.

But it goes without saying if you find you cant tolarate certain foods. By stopping eating them will make you feel better whether you have fibro or not xx

Momo

PS I see you have left your post unlocked to this community only for privacy reasons you may want to lock it. Also locked posts tend to get more replies for obvious reasons. If you wish to lock your post this link will show you how 😊

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Yassytina profile image
YassytinaFMA UK Volunteer

Morning, just want to say welcome, my saying is been run over by a tractor ,does the pain feel slightly better when you have a bath in warm water ? I do find using my hot bottles help as well, if and when you can pace urself during the day helps , I try and take short periods of rest , certain areas I use ibuprofen gel to rub in , shoulder blades , calf muscles, as for diet like dizzy says no specific , but if you can eat fairly healthy that is good for us. I hope you find the forum helpful , I do find reading posts helps and lots of friendly advice and tips x

Acocoa profile image
Acocoa

Hello. I do say my body feels like I have been locked in a cupboard and I'm fighting to break out hitting my body all over the tide space. I feel tired and exhausted even after rest or having 7 hours sleep if I sleep? My pain is not getting better.. My knees hurt when climbing up and down the stairs, my bottom hurts sitting for long. I am back in work after 2 months off but I am dreading. I am scared I will have another flare up due the cold weather and my job and family life.

I'm so sorry we have no relieve from pain.. maybe some do but for others the pain is constant. No meds helps, just soothes the muscles. I will say contact your GP and ask for urgent treatment . Sending hugs 💛

lanzarote55 profile image
lanzarote55 in reply toAcocoa

I feel for you, its a terrible thing to live with. 😩

Cat00 profile image
Cat00

I go to the gym and use hot water bottles, pain killers don't do anything for me.

Roo1972 profile image
Roo1972

Hi I've found myofascial release massage has been extremely helpful. Had never heard of it, didn't put much faith in it (but heck, you'll give anything a go when in pain) but for me it has worked. It has reduced my flare ups and helped bring a flare up under control. I can't say why (I understand the fascia has nerve endings which can be 'twanged' as a result of tight knots in the fascia - I am covered in lumps and bumps under the skin) but I am so grateful I have found something as I can't take any medication other than paracetamol either. I tried acupuncture but it didn't work for me but it does work for some people. What I would say is that there is lots out there to try (inc trying different diets - since fibro anything spicy or hard to digest is a no no for me) and there is hope that you can get your pain under control abit more. I know that probably feels a million miles away right now but being on here you will find lots of information, help and support and you will get there.

MaggieSylvie profile image
MaggieSylvie in reply toRoo1972

I too have had myofascial release therapy and the migraines have totally gone and I'm not sure that my aches and pains are FM related anymore as I have other things like osteoarthritis and four compression fractures. It is some years since I have visited the myofascial therapists. My GP has stopped all the meds that really work on pain, leaving me with paracetamol that isn't effective enough to let me sleep at night so I have ordered Heal and Soothe. I have had it before but I can't remember how it worked for me, but yes, anyone who has access to MRT should definitely have a few appointments 'cos it only works.

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