Fibromyalgia support group in north east?

[Maz20]

Is there any support groups available in north east England? Been suffering a lot of pain and just been told it’s fibromyalgia after 2.5 years of tests. Got sent a link for pain management and that’s it? I suffer nerve type pain all over body as well as throbbing pains in joints & tingling in legs. Is anyone else the same? Tried Amitriptaline but they just make me feel crap in morning and just help me sleep really. I felt so low that sometimes I just want to end it all. Would love some guidance.

Thanks

[Westiebabe]

Hi maz20 I feel your pain! However I have felt a lot better since taking duloxetine. Please ask your doctor if you can try it. Honestly it’s helped me a lot. I’m only on a low dose it’s def worth a try. I don’t know if support groups are running at mo there used to be one in Newcastle would need to check since COVID . Hope you feel a bit better soon Linda

[Maz20 in reply to Westiebabe]

Hi Linda, thank you so much will have a look at that. I know nothing about this and the meds. Think I’ll be moving docs again in hope I find a one that’s going to help me.

[Westiebabe in reply to Maz20]

Whereabouts in the north east are you ?

[Yassytina FMA UK Volunteer]

Hello Maz20 , hopefully support groups will be up and running soon if not already , check your local Community Facebook to see if anyone can offer you some info, I too take duloxtene not only because of fibro pain but got so down and terrible anxiety , 4 years on I can honestly say for me personally it’s been a lifesaver. You could discuss this with your GP about trying something different and speak honestly how you are feeling right now , I stuck with it until I got the right help and sometimes I see the nurse practioner not always my GP. Take care xx

[Katiepc24 in reply to Yassytina]

Hi Yassytina how do you Find the duloxtene. My GP mention last week to help with the pain and stress/anxiety I am suffering from. Was on amitriptaline but it did not do anything for me other than put on 2stone.

Was wondering if weight gain was a side effect of duloxtene as well. Can not afford to put on any more weight.

I eat a good healthy balance diet and run 3miles 4 days a week and do other exercise and still can’t shift the weight I gained while on amitrptaline.

[Yassytina FMA UK Volunteer in reply to Katiepc24]

Hi , I have put on weight but taking my age into consideration 59, then also giving up my regular swimming 3 times a week through fatigue properly has not helped, I am more in control now of how I am feeling and no anxiety 😀

[Maz20 in reply to Yassytina]

That’s great thank you so much xxx

[Hazel_Angelstar Administrator FMA UK Staff]

Hi, we have a few groups registered with us in the North East. You can either email me on [e-mail] or the regional coordinator on [e-mail] with your postcode and can check for your nearest

[Maz20 in reply to Hazel_Angelstar]

Hi Hazel,

Thanks for your message. I tried emailing that email last night and it bounced back. I’ll have another try thank you.

Maria

[Hazel_Angelstar Administrator FMA UK Staff in reply to Maz20]

Which one bounced back, and I'll get it checked. Not aware of any issues, and emails been coming into head office today without any problems

[Maz20]

My mistake hazel, I put in office rather than head office 🙄