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Fibromyalgia Action UK

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Advice please

Niceday01 profile image
11 Replies

Morning all

I am new hear taking me a bit of time to write anything. I have fibromyalgia I am working full time but it’s now getting to much for me it’s taking me a long time to come to terms with this as in a funny way my job helps me with regards to getting up and have something to look forward too but I am now at the stage I cannot to this anymore. I always earned my money and never claimed any thing I was wondering if anyone can give me some advice on what type of benefit I can apply for bearing in mind I want to apply for reduced working hours I want to try to work for as long as I can but full time is just to much now with tiredness and fibo fog which I get a lot With tiredness and that mainly afternoons.

I hope you are all feeling ok I understand good days and bad days I wish you all well and stay safe x

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Niceday01 profile image
Niceday01
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11 Replies
Dizzytwo profile image
Dizzytwo

Good morning, nice to meet you and welcome to our group 😊I see you've left your post unlocked to this community only. For privacy reasons you may want consider locking it. Also locked posts tend to get more replies for obvious reasons.

You may like to get intouch with our benifits advisor Janet. It is free and completely confidential. The link below will explain how to get intouch if you wish to. You will also find other information you may find helpful.

healthunlocked.com/fibromya...

Momo

Buildashed profile image
Buildashed in reply toDizzytwo

Hi thank you for your reply I’m not sure how to lock my posts but will have a go. Thank you for the link also, I am so desperate I will try anything. Many thanks again

Buildashed profile image
Buildashed in reply toDizzytwo

Hi Dizzytwo, I apologise this comment wasn’t for me, it wasn’t until I clicked on the link that I realised. I am definitely losing the plot. I think desperate might be the word I’m looking for. I can’t believe I replied to a message that was irrelevant to what I was asking for! I feel such a plonker please accept my apologies, my heads all over the place.

Dizzytwo profile image
Dizzytwo in reply toBuildashed

Aww no problem, and I'm sure your not a plonker lol if you need further help with locking a post or anything about forum navigation please feel free to pm me and if I can help to explain I will do my best 😊

Niceday01 profile image
Niceday01 in reply toDizzytwo

Thank you for your reply I will look how to lock the post this is the first post on here not sure how things work. Thanks for the link I will have a look at that too. Have a good day

Claire787 profile image
Claire787

Hi niceday01 I have been diagnosed with fibromyalgia as well I work and I tried to claim benefits but was refused after many interviews and assessments I was told I’m not entitled to claim anything, I hope you have better luck than I did.

Niceday01 profile image
Niceday01 in reply toClaire787

Hi Claire Thank you for your reply this is my worry I had a feeling this could happen I don’t think they understand the pain and discomfort you go thought I want to do the right thing and work but it’s just a little bit to much full time now i really appreciate your reply.

JayCeon profile image
JayCeon

After years at over 45h/wk a continual full flare got me down to 0 for 10 months. Going up to 10, 20, 28 using job rehab was all a struggle, so I've had to break off and I'll have to keep it down under 15 or even less using disability pay, reduced hours due to being 'severely disabled' and if necessary lots of saved up overtime. So I understand very much where you're coming from. It's a new life with a focus on self-care not working for others or getting money in.

Niceday01 profile image
Niceday01 in reply toJayCeon

Sorry for very later reply jay it’s just a mess trying to get something i think I am Entitled to I have worked all my life now my condition is worst I feel i am banging my head on the wall I paid all my taxes etc I only want a little help I am willing to work but just not full time it’s to hard now the fibromyalgia will not allow it.

JayCeon profile image
JayCeon

Hope Momo's link helps. Keep us posted, so we can share & encourage.... best if someone can join in who has won that sort of battle. I didn't have to fight, thankfully, and also don't know the UK situation...

Paulainpoole profile image
Paulainpoole

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