What was or is your experience with Fibromyalgia? Please share a little. I’ve shared mine.

[Newme2022]

5 years ago, life changed. It started with a skin rash, that I was told was eczema. I started to have body aches, hair loss, ringing in the ears, skin changes, mood changes, and memory loss. Last July it was walking double pneumonia, and things haven’t been the same since. Anyone else experience such? What is next?

[Susan12345678]

Was it a red and itchy rash? I am very allergic to polyester. Even a polyester label on cotton makes me itch. They didn’t diagnose it. I only worked it out after 10 years when it was at its worst. Check everything for allergies just in case. It can affect immune system.

[Newme2022 in reply to Susan12345678]

It started as a small circle that grew to a Quarter size red itchy circle. Eventually, several round patches on various parts of my body. I had a biopsy. The dermatologist said it was numular eczema. Thanks for the response.

[Fibroska]

Hiya, Unfortunately I don't know what or when Fibromyalgia was triggered in me, I have lived with joint aches and pains from a relatively young age, this started in my legs, and progressed throughout my body(even into knuckles: toes & fingers) from my mid teens, feeling it was Psychosomatic, I went to my GP needing to get to the bottom of my pain, this was in 1990, round about 10 years and 3 GP later I was diagnosed with Hyper Mobility Syndrome by a Rheumatologist; I was only diagnosed with Fibro. in 2018 when i attended an appointment to rule out Arthritis & Diabetes with a new Rheumatologist.

I have experienced ringing in the ears, skin changes, mood changes and the memory loss which you mention, but no rash or hair loss(not any extent). Mainly it is body pain/sensations(disturbed sleep), head aches/migraines, tender scalp, dry eye's and mouth, skin crawling, confusion, tender glands, poor grip, foggy head(heavy feeling, unable to concentrate on anything), difficulty with balance, numbness, extremely cold feet(feeling wet), extreme fatigue, muscle spasm, sensory overload, easy stressed; absolutely anything I do causes worsening of symptoms; but yes in pain 24/7(other health issues contributing).

I hope you are able to manage your symptoms and have your 'normal' life, unfortunately I have not worked for many years, having volunteered with a community garden between 2011 and 2018(last thing that was anything like working), thanks to my wonderfully supportive husband.

Please know you are not alone, and you will receive some wonderful support and advice from the fantastic people on here.

Remember and be kind to yourself.

Sorry for waffling.

Stay safe, keep well and be strong.

[Newme2022 in reply to Fibroska]

Wow. Thank you for sharing. Yes, dry eyes, white tongue, burning skin feeling are also symptoms I have experienced. Stress does seem to aggravate everything. How feeling just generally ill? Do you experience that?

[Fibroska in reply to Newme2022]

Yeh, constantly unfortunately.

Keep well.

[releasethemagic]

My fibromyalgia started in 1997 when I was 37. One day driving to work, my car went over loose gravel all over the road. I lost control at 60mph, hit a tree and the car rolled over a couple of times, ending up in a ditch on the opposite carriageway. I came out of it alive with spinal damage and a crushed wrist that required bone grafts from my hips to rebuild it. The pain never went away and gradually spread all over my body. I have a fantastic Pain Management Consultant in Leicester, Dr Bayani whose expertise keeps me going. There have been times when I wanted to end it all, but his treatment reduces the pain to bearable levels. Covid 19 has meant he is working in intensive care so people like me have to wait but we all understand why.

[Newme2022 in reply to releasethemagic]

Wow. Thank God you are here with us. 🙏Thanks for sharing.

[releasethemagic in reply to Newme2022]

It was a long time ago now but I avoid that road, even today. My pain is controlled with Pregabalin, Duloxetine, Meloxicam and Dihydracodeine. I also have intravenous lignocaine infusions 3 times a year and steroid injections into my spine that last 3 or 4 years.

[YASMINTINA FMA UK Volunteer]

I can relate to ringing in the ears, aches mostly all the time now, differently memory loss and Fibro fog we call it here , so often go blank in seconds and have to re trace what I was about to do, but we can chat here have empathy with each other that helps xxx

[Newme2022]

Yes. It gives me some peace to know it’s not only me.