Fibromyalgia is crippling

[MyBlessings]

I am 47 but feel like 80 due to fibromyalgia stiffness & pain all over also Fibro fog, what’s worse is there’s no cure. So afraid of the future. 😔. Especially when you have little kids. It is mentally draining.

[Hazel_Angelstar Administrator FMA UK Staff]

Hi sorry you are struggling so much at the moment. I'm only a few years older but likewise there are some days like I feel double my age.

I try not to think on their being no cure at moment (many health conditions have no cure) and focus my attention on positively finding ways I can manage my symptoms and give myself the best quality of life.

Certainly it took me a while to get to this mindset, and also required lifestyle changes ... But I now manage my symptoms fairly well (still in a lot of pain but most of time it's manageable). For me pacing is key to allowing me to live my life, working with the pain not against it, using my energy wisely etc

Life with fibro is not necessarily all despair and worry about the future. I totally get how you are getting because I've been in that place myself, but just wanted to give you some hope that it can get better again xxx

[YASMINTINA FMA UK Volunteer]

Hello , yes I understand with young children to look after it you will have days you feel completely drained, it’s horrid with pain and stiffness, are you on any medication from your doc to help at all ? With the current situation out there I’m guessing with the children being off school you are feeling it more and not like you can get a break from family ie grandparents etc, don’t feel quilty it they have a morning with a couple of films on and you sit down with them as cannot be expected to be on the go 24/7. Hopefully the Sun will return and they can get back outside in the garden, I find being out in the warm Sun does help my pain, xx

[CheetieCat]

I think we've all been exactly where you are right now, it's a nightmare isn't it.

Looking too far in front is just too overwhelming & trying to do everything you used to do in the same amount of time becomes like a stick to beat yourself with.

All of this puts even more pressure/stress onto yourself that makes you feel even worse.

So, be kind to yourself, give yourself a break! Do what you can, when you can. Pacing is SO important, rest when you can, when the kids are busy doing something, take a break & DO NOT FEEL GUILTY 🤗🤗🤗

[Julesubu]

I know what you mean I'm 49 but can barely move about some days. I don't have kids as knew having fibro from younger that I would struggle too much.

Just do what you can in short sessions. I usually pop washing on and rest, take a shower etc then rest. Get some aids to help, I have an auto hoover and it's so helpful keeping on top of mess from my dogs. Dont push self on better days as suffer in long run.

Xx

[Purplebluebell]

Realise this is so hard, as the others say try to pace yourself, it really helps to do that and then you can feel as if something has been achieved with your day. Accept any help available with the children. It won't always be like this but I hope life looks up one day. Keep hopeful.

[SusieSquirrel]

I'm 49 my nearly 80 yo mother is so fit and I can barely walk to the loo.

Mornings are so awful. I hate waking up as I know I have that horrible daily struggle of just getting out of bed.

I can't imagine hard hard it would be with young kids too

[Bondbug1987 in reply to SusieSquirrel]

Hi, I have been suffering from exhaustion hip and back problems since I was 46. Got told osteoarthritis both hips,knees spine and both wrists also two discs bulging.Last year I got told I had fibro which has no cure.Nights are spent with terrible pains in both knees and base of spine. I can never get out of bed easily or walk I now wear bedsocks and slide across laminate using door frames to pull myself along I know its crazey but it gets me going.

[Fibromepainless]

I feel your pain, and I feel ninety..lol.

It doesn't help the kids being off school,

It's hard not thinking about the pain ...

I find relaxing music helps , I also find that earphones and earplugs are a blessing when anxiety levels go doolaly , take care , x

[Macdoual]

I totally understand what your saying. I have a daughter who is 17 but has autism so she also requires a bit of help. I'm so exhausted with it all. I mentioned to my husband about maybe getting a wheelchair or something so that I can get out for fresh air on the days where it's too painful to walk but that went didn't go down well. I'm 46 and don't want to feel like a prisoner in my own home. Also waiting to hear if I'm being sacked from my job due to long term absence. The joys of life. Take care and remember your not alone in this x

[Chrisbel]

I don’t know where you live, but there are about 68 M.S charity centres around the country, that you can join to use their barometric chamber for breathing oxygen at 2x normal atmospheric pressure, and that actually got rid of my brain fog, after about 80 x1 hour sessions, and since then I have been going for 1 session a week, to maintain the clarity of mind. It helped immensely with my fatigue and brain fog, still have pain but at a reduced level, and can manage with supplements and paracetamol. Highly recommend giving it a try, after the virus thing is cleared up.

[Chrisbel]

Also to cut out most carbs and definitely sugary foods, dials down the pain levels, as I have a sweet tooth I take cinnamon and chromium to control the blood sugar levels and stop the sugar cravings, hope that helps

[Stressed20]

Hi I also have fibromyalgia and brain fog. Can I ask you does your pain feel like the pain in the body you have when you get a bad flu? I am experiencing this type of glue constantly and it’s getting worse. I also have bad back and hip pain