How many of you lovely people get so frustrated when you are having the worst day by feeling really down and full of pain and someone tells you how well you look. Inside you want to say how you feel but you end up thanking them whilst thinking if only you knew yet questioning in your head “are you just saying that to make me feel better” on a positive note with Fibro fog I never get board because I forget what I was up to and start again
Fibro confusion : How many of you... - Fibromyalgia Acti...
Hi,know the feeling well, and I love your positive point about fibro fog 😊, it can be a bit like the film groundhog day .
Take care and hope you get some sleep 💐
I know what you mean it can get boring you try to do something but your body says are you joking!! mine you it can be amusing when you put something down and don't leave the room only to go and pick it up and poof not there spend five minutes looking like a mad woman then stop and tell yourself its here somewhere, once lost my phone only to find I was sat on it.
You worked some long hours it must be strange for you and you've got a lot to adjust to with all the changes.
Hope you get some💤💤night .
Ohh, god you're luckier than me can't remember when I've been at my best, I've learnt never make plans for the next day unless I have to with appointments.
Hope you enjoyed last night's fun 🥳🥳.
Oh I don't do normal much I do daft!!!.
Forgot what normal is 😄, and as for sleep uhh what's that????
Hi, and welcome 😊.
Yep I think I've forgot what sleep is my sheep are always going on strike or falling asleep on me I'm around most nights wondering what sleep is
Surprise surprise, it's me again!! Not sleeping as per usual?!
Can't get it to play!!
I like this one, thanks Zoonie
Zoonie is also are DJ !!!!,he does a good crazy welcome to the mid night madness it helps get though the night oh do you know are your sheep going anywhere nice?🐑🐑
Yes, I agree!!
Now I can't play that video ☹
It says video unavailable!!
Yes, I know what you mean. When we bumped into a couple of friends a few weeks ago, they asked how I was so I said not so bad!! Hubby then stepped in no, tell them how you really feel which is s*** and then he told them how I was really feeling!! Take care e
I could understand where hubby was coming from, though. At least he tries tob understand this crazy illness. He's my rock
Hi Lynne , sorry to hear from you means the sand man missed you again 😭, tried to get Zoonie to play Meatloaf think he's having trouble with copyrights, feeling better know you had rotten morning, now rotten night ☹💐xx
I'm coming off now as I just need to snuggle up with my hot water bottle and electric blanket, pain is too much. Love and hugs Lynne xxxx
Take care snuggle up warm and get some sleep,
Love and hugs Michele xx
Thank you. Don't think I will sleep but I'm finding it hard to message when I'm in pain. Thank you all for your continued support. Love and hugs Lynne xxxx
Always here for you Lynne,
Get some rest and hopefully some relief 💐😊❤
Never seen her before but she's good!!
Lol....I went to see the hospital dietician yesterday and was actually having a rare good day. The dietician started off by saying " I do not think you should be here to do not look well at all!" My thought was if I look that bad on a good day what must I look like on a bad day. She then made my wife's day by saying are you here with your daughter? My thought was I must look bad as my wife is not that many years younger than me. Being told you look well may be a little white lie and annoying but being told how bad you look is far more worrying...Lol...Hopefully the fog will make me forget.
I've been in so much pain for years and sometimes just someone knocking into causes extreme pain...I had a shop worker few weeks ago who rammed her trolley into me and just laughed while saying sorry...that kind of thing makes me really angry as I was then in agony. Its only recently after being to drs thousands of times taking 180mg of morphine a day and large amounts of antidepressants that I'm finally being listened to and agreed that it is fibro. My memory after being amazing for years is barely existent now and the IBS side is agony I barely eat as whatever I do eat leaves me doubled up and invisible illnesses are the ones people dont understand until you have one. People say u dont look like ur in agony ...well that's because I do have a high pain threshold and I try my best to smile and not let people see how depressed I am. The days I can barely lift my feet to work my car is my lifeline everyone knows that I can lay back on cushions and have a social life. Anyone got any help with IBS side? I'm sick of living on nothing or on odd occasion when I have a jacket potato or something simple I will just be in agony and wish I hadn't. Has anyone tried counselling or cognitive sessions? Years ago I know they tried to say fibromyalgia was just in our heads.