Frustrated Fibro sufferer: I am so fed... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Frustrated Fibro sufferer

Katyloo profile image
6 Replies

I am so fed up with pain. I was diagnosed in 2018 with fibromyalgia, I know I've had this for years, at least 25 years. This Chronic illness was only given a name in 1996 and I have been fobbed off by the medical professionals for years.

Until my marriage of 42 yrs broke up in 2017. And so did my Son's 6 months later. To cut a long story short. I had already been through physical and sexual abuse all of my childhood. So I was troubled to start with. I met my husband at 15 yrs old, married at 17, he was controlling and coersive and I was never good enough. Then I walked out after 45 yrs, and now live with a man Who I've known for 34 yrs, It's So complicated. I cannot say too much, except that my marriage wasn't a huge amount better than my childhood. I used to have two border collie dogs and walked 25 miles a week with them. But due to so much mental torment, it's exacerbated this fibromyalgia to a point where I am now almost homebound, I also live on the breadline. Because I have no money of my own to fight a divorce. There's no legal aid now. Most of my family and friends have deserted me, and Idont know how to make friends, I am awaiting my PIP forms, but wrote in for them because I couldn't handle the phone call. I'm so sanded bored, I am a person who likes people and likes to be busy. This is torture.

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Katyloo profile image
Katyloo
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6 Replies

Hi

I really feel for you. You have been through so much. Have you got anyone you can confide in. You can pm me if you would like to. Where do you live, if you don't mind me asking. Love and hugs Lynne xxxx

Katyloo profile image
Katyloo in reply to

I live in York. I have a new partner, who is very good, but I'm sure he must get fed up with it all, even though he says not. I think, well, I hope I am granted PIP. Because at least I will have some money to get out in a taxi now and again. I live in a beautiful city and seen none of it. I'm keeping Hope. It's a thing that keeps us all going. Thank you for your kind words.

in reply to Katyloo

York is beautiful. We live in North west in Castleton Rochdale. We could perhaps meet up in the summer as York isn't far from us. I do have a great support network of family and friends and all of you on here. Love and hugs Lynne xxxx

rosewine profile image
rosewine

So sorry to read your post you have been through so much. I can imagine the stress of it all must have been making your symptoms worse. Even though your marriage was very unhappy it shows alot of courage on your part to have oart d after 45 years especially after marrying so young. I met my husband at 16 and we have been married for 45 years and it is as though you have known no other life.

Even though you have no money to fight the divorce hopefully the courts will look at your 45 years of contribution to the marriage and take that into consideration. At least your new partner is going into the relationship with his eyes open knowing you are ill so hopefully he can carry on being a support to you.

Fingers crossed that you get what you deserve with your PIP. Thinking of you.x

Hun speak to your g.p.about being alone.there are groups they can introduce you to .

Katyloo profile image
Katyloo in reply to

Thank you, I didn't know that. I think I have finally found someone at my Gp' s. It's a nurse practitioner. I like him, he looked straight at me and actually listened! He also didn't preach at me, as most GPs do. They scare me to death. And I am becoming far too agraphobic for my liking. I used to run a garage business with my ex, I made brake pipes and was the book keeper, I worked a thirteen hour day! Now, I, amongst many others on here can only just manage to get through four hours a day.

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