Hi, I'm new and looking for some supp... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hi, I'm new and looking for some support and advice. And hopefully be able to give some kind and friendly support in return.

Backbracelady profile image
7 Replies

Hi all, I'm new to this community, I have been suffering with Fibromyalgia for 12 years and spinal osteoarthritis with severe nerve damage. I feel I need more support from people who understand how I'm feeling, not just physically but mentally as well. I try to live a normal life and work and enjoy times, but it can be super hard sometimes and I'm currently feeling like it's all a bit much. I just wantes ro reach out and talk to someone who feels like I do. Thank you 🙂

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Backbracelady profile image
Backbracelady
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7 Replies
Bigears16 profile image
Bigears16

Welcome I’m also new on here and I have recently had to stop working so I get it

Lynne J

Backbracelady profile image
Backbracelady in reply to Bigears16

Thanks for saying hi, I'm sorry to hear you have had to stop working, this must be so hard to adjust. How are you feeling about it?

Bigears16 profile image
Bigears16 in reply to Backbracelady

I feel crappy about it and sometimes useless as I’m only 41 and am used to caring for others xx

Backbracelady profile image
Backbracelady in reply to Bigears16

I understand, I'm 30 and feel useless! I hate the thought that this is it for the rest of my life... I struggle with work and needing time to rest and sleep. xx

Bigears16 profile image
Bigears16 in reply to Backbracelady

Sorry not been on last few days, listen to your body and don’t burn yourself out like I did xx

ShelWhitt profile image
ShelWhitt

So sorry you are having such a bad time. Hope knowing we are all friends on here; understand what you are going through, and care helps. Wish I could offer some practical advice, other than my best friend is my hot water bottle as I can't take the meds. Try pacing, resting or even take a short nap when you can. I also find if I am feeling really low listening to music helps to lift my mood. Best wishes. x

Backbracelady profile image
Backbracelady in reply to ShelWhitt

Thank you for responding, it is just nice to know other people truly understand me. Thank you for the advice, I am permanently attached to my hot water bottle too lol I shall try the music idea definitely! xx

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