Sassy

[A-1qa1-]

Hi I was diagnosed with fms late in 2018 after 2years of feeling like I’m going mad my doctor kept saying it was my osteoarthritis or viral infection my consultant diagnosed me told me to keep active some days I can’t get out of bed to go to work

[Hidden]

Hi

I really feel for you. I had to take ill health retirement last year cos of my many conditions. I was lucky that I had a very understanding boss, I hope you have too. Love and hugs Lynne xxxx

[A-1qa1- in reply to Hidden]

Thanks for your reply I hope your day hasn’t been too bad I’ve had one of my worst one yet couldn’t get out of bed when i did I passed out just another day in paradise why ask for help no one listens feeling pretty low but sending hugs to you

[Reykua]

Hmmmm. Unfortunately your experience is not unusual.

Being dismissed then referred for psychological support for over two years before any physical issues were even considered, only to discover after an MRI, lumbar spinal stenosis with osteoarthritis, has left me permanently traumatised and unable to seek GP help for my depressive episodes.

There is a bit of a tendency (perhaps for expediency) to latch onto something then link all and every symptom you present with thereafter to that initial diagnosis.

I'd still recommend you make a list of every single symptom for the next 12 months to get an accurate picture for yourself to ensure the diagnosis is correct.

All the best going forward. It's never easy.

[A-1qa1-]

Hi fellow fibro sufferers thank you for replying I really didn’t think anyone would couldn’t get out of bed today pain really bad and tiredness was almost unbearable also passed out when I got up to use the loo feeling a bit lonely and afraid even though my husband is great I can be on my own most of the times

[ShelWhitt]

I'm with you all the way. God what next. Last 2 years been horrendous. On antibiotics for supposedly kidney infection - watch this space - over 30 years with similar symptoms. Hysterectomy for endometriosis, suspected appendicitis, irritable bowel, chronic kidney disease, and i have still got the pain, worse now than ever. Now I am getting tingling and numbness in feet and lower legs, i have been trying to shrug off, but I realise there is no chance. This on top of a multitude of other problems. No one in my circle understands or realises the daily hell endured to get thro the day. I look ok, but this is not living. Hugs to all fellow sufferers.

[klr31]

Check your thyroid, vitamin D, B12 (tingling in legs and feet are a symptom) and folate/ferritin.

Karen