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Fibromyalgia Action UK

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living with fibromilralgia

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I was diagnosed with fibromilralgia about 6 years ago I also have ostioarthritis. I have had surgery several times for ostio but was then told I had Fibro. I am struggling in alot of pain, headaches, blurred vision, IBS, depression and so on. If anyone has any help please get in touch.

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Hi

So sorry you are not feeling too good. I find CBD heat rub quite good. I also bought a magnesium spray for joints which I'm struggling with, also muscles and bones too. Please take care Lynne

Maya23 profile image
Maya23

I’m sorry you are feeling so rubbish. Fibromyalgia is a horrible illness isn’t it. I used to not want to take any drugs but now I find them helpful. I take 2 different antidepressants for managing pain and helping with sleep. I also find it helpful for my mood, as I feel depressed often. I also take painkillers. I find a warm bath and magnesium spray to rub into muscles helpful.

Reykua profile image
Reykua

Oh how awful.

Does that mean the surgeries were not successful?

Is it possible that the surgeries have contributed to your pain levels?

Have your consultants said anything else about your osteoarthritis and have you been referred to anybody else like a neurologist or Pain Management?

Many of us go through alot of trial, error and experimentation to discover or find things that work for Ourselves because fms is so individual.

My advice is, until you're satisfied with how your body is working, don't hesitate to ask questions and look for answers.

All the best going forward

Midori profile image
Midori

It is easy to fall into depression when you feel sidelined and ignored, most folk will forget you even exist unless you make the effort to keep in touch with them. Doctors are having a very hard time at the moment, coping with many GPs retiring and not many opting to train for GP work. Add to that the money and other constraints put on them by Government , and it's not hard to see why many are taking early retirement or going abroad, where the work/life balance is better, as well as salaries.

People are mainly concerned with themselves and their families and don't realise they haven't seen somebody for awhile until often something happens. I had a shock a few weeks ago; a friend whom I hadn't seen for awhile died, and it was only the Notice in the local paper that called my attention to the fact I hadn't seen her for at least a year. I feel really bad about that, but I should have kept up with her.

It is up to each of us to keep friendships alive; not expect the other person to do it all the time. I only go out once a week in order to do a little light shopping and pay bills, but I see people I know each week and say hello, even if I don't know them well. I take myself and my rollator into coffeeshops and sit for awhile, and often there will be someone who will want to sit and chat for a few minutes. I raise smiles in the supermarket by having a joke about me being a 'Wide Load'.

It raises the spirits, even if you never see them again. I chat to the stallholders in the market. Simple things like this help to avoid depression; You have to get out there, not sit in bemoaning nobody coming to see you.

I won't let myself get depressed, and I do it by getting angry with the thing causing my isolation (Fibro). I won't let it win. I have decided I will fight it for every inch of what I can still do, and not let it take any more from me that it already has.

Cheers, Midori.

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