In the Elimination Process πŸ€” - Fibromyalgia Acti...

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In the Elimination Process πŸ€”

HellyLlewelly profile image
β€’9 Replies

Hi All,

Ive just had folate, ferritin, thyroid, diabetes, full blood count done at my Drs and its all came back fine.

Was any of this pointing toward a diagnosis ie, it could be Fibromyalgia because nothing else is showing?

Ive been told the diagnosis is made via process of elimination πŸ€”

Thanks for any help in advance!

Helly

Xxx

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HellyLlewelly
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desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

not strictly a process of elimination but they do have to eliminate the most likely options that your symptoms present. There is a criteria for fibro to meet but there is no conclusive blood test for example.

skit profile image
skit

Medical history plus various tests can conclude that Fibro is a cause of widespread pain only if everything else has been ruled out in my experience.

Marz profile image
Marz

Wondering if you requested copies of your test results ? You can then check what has been tested and monitor your own progress. When GP's say fine/normal/OK - they mean your results are in range. It is where you are in the range that is key. Folate and Ferritin are good mid-range. No tests for B12 or VitD ? Both help with pain when optimal.

Often when thyroid is tested only the TSH is done - this is a Pituitary hormone so tells you little about Thyroid activity. Important to have T4 & T3 tested and Thyroid anti-bodies TPO & Tg to rule out Hashimotos.

T3 rarely tested in the NHS and is the most important thyroid hormone needed in every cell of the body. Sadly due to poor testing people with thyroid issues are missed. With almost a 100.000 members on the Forum Thyroid UK you soon get the picture of how little is understood about testing and interpreting results within the medical profession ...

VitD good around 100 & B12 around 500. If you want to check me out you can click onto my username above and read my Bio ... 😊

HellyLlewelly profile image
HellyLlewellyβ€’ in reply toMarz

Thats a very thorough and comprehensive reply thank you so much.

All you mention were tested TSH was the only one I got range and level of over the phone it was 3.2 on a 0.27 4.2 or close to range.

I can get a print out next week.

I will come and have a look at your profile thanks so much.

Im a post hystetectomy bso lady at 40 and have had extensive surgeries to remove endometriosis having had a bowel shave of it in March 2018

Thank you

Helly.

Marz profile image
Marzβ€’ in reply toHellyLlewelly

The TSH result in a healthy person is usually around 2.5 so your thyroid is beginning to struggle. Was your test fasting and early in the morning ? TSH is affected by food and time of day I have read. Do ensure anti-bodies are tested - Anti TPO - to rule out Hashimotos. I doubt the most important T3 test will have been tested on the NHS - sadly.

Sorry to read about your Endometriosis ... I have read there can be a link with auto-immunity generally including Hashimotos.

Horsesgalore profile image
Horsesgalore

I had a wide range of blood tests done & various X rays, I was then referred to rheumatologist more blood tests & a lumbar spine MRI where they found OA. At a following rheumy appointment my tender points were checked & I was diagnosed with fibro, discharged back to my GP. I was lucky in that I was diagnosed in 18 months.

HellyLlewelly profile image
HellyLlewellyβ€’ in reply toHorsesgalore

Hi and thank you!

Getting a diagnosis these days Im sure is gking to be a long task. My previous GP mentioned this to me and I wonder did he note that he discussed Fibromyalgia with me.

I will discuss it with my new Dr.

I just cant help feeling a barrage of new symptoms and annoyances that sadly seem to be experienced by Fibromyalgia sufferers.

I really dont want it to be Fibromyalgia.

I feel like my life is being stolen out from under me.

Thanks and take care

Helly.

X

CrystalGecko76 profile image
CrystalGecko76

I have under active thyroid (20+ years) fibro (20+ years) chronic fatigue, IBS, diabetes, high blood pressure, chronic migraine and headaches chronic nausea...and lots of other little issues the doctors can't seem to fix but the only one they don't help me with is the fibro...I'm fed up with it as now I'm in constant pain and have no medication that I'm on that can help me with it.

HellyLlewelly profile image
HellyLlewellyβ€’ in reply toCrystalGecko76

How frustrating for you.

Have you been down the pain reliever route including neuralgial pain relievers.

Im on a low dose of Pregabalin its helping chronic pain and anxiety probably too. Ive got pelvic pain and had stage 4 endometriosis removed during hysterectomy.

Pregabalin has helped me get my life back a bit it doesnt work all the time but on days the pain cant break through its worth me taking it.

Im also on Fluoxetine antidepressant for anxiety depression, sweats and PTSD.

The combination keeps me ticking over with regular ibuprofen and cocodemol too.

Im noticing my legs twitching alot mostly on resting up.

Its not a vitamin deficiency as all those came back normal.

Going to get my print outs and investigate my levels.

Good luck and I hope your pain eases soon.

Helly.

X

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