New member: Hi, I’m new here, diagnosed... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hi, I’m new here, diagnosed 18 months ago after 30 (yes that’s right) of symptoms. For most of that they had put everything down to degenerative disease. Was put on amitriptyline which helped at fist, then added dulexotine which helped for a while, now added pregablin and Zapain to the mix.

Has anyone seen a neurologist for this? As family want me to “go private” to get pain relief. But diagnosed by rheumatologist then moved to care of GP.

I don’t see it is worth paying to go private when I have a diagnosis... I think family are hoping it will be something else that maybe treatable.

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YASMINTINAFMA UK Volunteer

healthunlocked.com/fibromya..., hello and welcome, if it helps I did have private until recently but found more help from my current gp( nhs) I think family etc want to find a cure and mean well but if you have been diagnosed by the rheumatologist and under the care of your gp and your happy with the treatment your receiving I agree with you. Did you put on weigh with dulxotene, I have put on a fair amount, the tablet works well for the anxiety not really for pain though. Just put a link above if you would like to lock your posts so only our community can see xx

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