Unsteady: Been told I have essential... - Fibromyalgia Acti...

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Unsteady

Beswick profile image
7 Replies

Been told I have essential tremor my jaw shakes, recently feel unsteady walking too , anyone else feel unsteady ,could it be fibro making it worse

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Beswick profile image
Beswick
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7 Replies
YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Hi there did your doctor give you any advice on your last appointment, being unsteady when you walk now must be a worry, would you get any aids to help with your walking?? Xx

rosie-2015 profile image
rosie-2015

I have essential tremor, I had to see the neurologist, I've had bother with my balance for year's, I use a walking stick. I have a rollator with a seat but it hurts my arms and shoulders, I should have got one that could higher, I've just been for a ct scan, I'll get the relults in a couple of weeks. I hope you you get it sorted out soon,

Rosie xx 🌹

aud01 profile image
aud01

I don't know how relevant this is , but my lips go numb but mainly my right hand side .. and I get tingling in my tongue and face ... the frozen lip is the worst bit though ..... I've also been to doctor re my balance, but they think mine is due to my mini stroke although I have said for a long time pre first mini stroke that I was losing my balance ....

Good luck and let us know how you get on xx

Patdoyle profile image
Patdoyle

I have the tingly nose mb lips too and my tongue feels tingly. My balance has been bad for years and got diagnosed with Menieres last year. I am very unsteady. I have seen 3 different neurologists and never really get an explanation for my symptoms. They told me what diseases I hadn’t got.

WF2k profile image
WF2k in reply to Patdoyle

Has anyone said what the tingling in your tongue is? I have that kind of thing every single day. My lips swell sometimes as well.

Patdoyle profile image
Patdoyle

No proper explanation for the tingling. The neurologist just looked at me as though I was talking rubbish. Then he said you haven’t got MS and that was about it. I get it off and on. It’s very strange.

Scoo1961 profile image
Scoo1961

Hi

I would contact your doctor re jaw

Just to be on the safe side .

I know fibro affect lots of places

Hope your feel better 😊

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