I'm back...been gone for a while ("so... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,444 members โ€ข 66,491 posts

I'm back...been gone for a while ("sorry" she said sheepishly)๐Ÿ

Cape_Cod_Sharon profile image
โ€ข10 Replies

Hello everyone. Apologies for my absence...been busy and overwhelmed with this liver disease. (as if fibromyalgia could take a backseat๐Ÿš— to anything)

In the midst of everything I was dropped by my primary care doctor (like a hot potato)๐Ÿ 

I found a lovely lady doctor, her name is Ashley๐Ÿ‘ฉ I really am so thankful that I found her. It took 2 months of searching...a lot of agonizing, some anger, with a bit of sorrow thrown in.

But here I am, happy to be here....missed you all โค

Written by
Cape_Cod_Sharon profile image
Cape_Cod_Sharon
To view profiles and participate in discussions please or .
10 Replies
โ€ข
YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Good to see you back and glad you have found this lovely doctor after months spent searching for the right one. Sorry to read of you having liver disease like you say having Fibro is enough, do take care, look forward to see you posting again x

Dinkie profile image
Dinkie

Welcome back. Pleased to hear you have a supportive doctor as it makes all the difference. Wish I had, I am still searching! Seems in my area doctors who believe fibro even exists are very thin on the ground.

spzgirl51 profile image
spzgirl51

Dear Cape_Cod_Sharon ,

I am so pleased to hear from you. I have been wondering how you are? I remembered you had said you were possibly going to have a liver transplant in the foreseeable future ? I do hope that life has been treating well?

Best wishes xx

Cape_Cod_Sharon profile image
Cape_Cod_Sharon in reply to spzgirl51

Hi, thanks for your compassion. I have decided NOT to have the transplant surgery, My condition is terminal and now they [you know who THEY are] tell me I have less than two [2] years to live. I said "I'll call you in 5 years!" My future does look somewhat grim, you can google "decompensated end stage liver disease with ascites prognosis" it's not very cheerful. But this is the hand I've been dealt or the path I have chosen and I will try my very best to remain positive and fill the room with love and light.

spzgirl51 profile image
spzgirl51 in reply to Cape_Cod_Sharon

Here is to love and light. In bucket loads. Take care xx

Kitten-kat23 profile image
Kitten-kat23

Wow you have been through it. I'm glad you are sorted, and have found a lovely doctor.

woodycacti profile image
woodycacti

Glad you are doing better. Doctors can really let us down, mine did the same thing to me!! They like the easy cases sometimes. ๐Ÿ˜ž๐Ÿ˜ž๐Ÿ˜žWhat are the symptoms of liver disease? I have a concern about my liver from too much Tylenol. I cannot find any useful information on it. Thank you ๐Ÿ˜Š Woodycacti

Cape_Cod_Sharon profile image
Cape_Cod_Sharon in reply to woodycacti

Hi Woody,

You can google the symptoms. Sadly, this is one of those diseases that does not get diagnosed until it is in the later stages.

Sharon

Cape_Cod_Sharon profile image
Cape_Cod_Sharon in reply to Cape_Cod_Sharon

google "decompensated end stage liver disease with ascites prognosis"

Cape_Cod_Sharon profile image
Cape_Cod_Sharon

UPDATE: Had to find another new doctor AGAIN, this one is 40 minutes away with a tail wind! But he's a nice man, jovial with a very kind demeanor.

You may also like...

Sorry not been on for a while

awhile but I have had a lot going on. You see I found a lump last November only very very small,...

its been a while but I'm back so here is an update on my life

live my life. Although I have struggled with my fibromyalgia I have now finished college and work...

Hi sorry not been here for a while.

Hi All Sorry but have been here for a while as I have just had some fun riding in an Ambulance...

Sorry to see you've gone Ken (The Author).

Author) a very fond farewell. You will be sorely missed. You were a wonderful caring, kind &...

i'm sorry

spend my life apologising. feel need to apologise here before i start. at least i know you guys...