Newbie here want to drop Hi to everyone

[sweetbitter]

we are not alone, I wanted to say, sometime when I go to some forums locally, I meet up people have similar or same illness, mentally and physically, so it took 3 years to be finally diagnosed with Fibromyalgia, it's wasn't that hard to accept it, because I had lots of pain mentally and break downs, some time rather feel some pain instead of nothing feel I am still alive, I guess everyone have different experience, and I got refused to referral to hydrotherapy, because my physio said I can do exercise on land, but she doesn't know I don't even do those exercise, she gave, because do causing pain, and she said I had improvement, I don't think so.

went to see a chiropractor privately, then he said because my spine wasn't in correct position, thats why causing me have pain all over, and want to put everything back to where it was then exercise on it, ,,,,,,,,,

every doctor want to have a go on to heal it, when you pay them, if its private, but have to say even one session makes us feel better in a way.

I had people ask me if you say you have pain why you are not in wheelchair, you said you are disabled why you are not even having a walking stick.

well, the body widespread pain, especially my right arm, and right knee, the grip strength isn't strong enough to even hold a walking stick, the health fit people they will won't understand it all unless they have experienced themselves.

what Can I do? keep silent, and suffer all along.

I have been pointed to a carer agency, and each time when carer coming the new ones, gives me a look , seems saying you are so young I ain't got to do any domestic work for you, only personal care, but not fair they think I LOOK young, then I must be fit like bird. had so many issues been treated badly and recently due to my mental health illness , one of my carer steal my bank card went out have fun for over 200 quid, it took a while to capture her, but it has made me completely lost trust in this agency social service pointed to me. they are hopeless, they pretend they care so much, while the money has been spend on our care, but we don't get the caring we needed ..........

sad world. but we have to carry on.

[Rose54]

Hi

If Social Services put care in place you will have or should have a Care plan that states what care is provided .

Due to all cutbacks in the system most Council no longer provide many hours for each customers.

I am so sorry you have experienced such abuse as you have thier is no excuse for it at all .

You can ask for a new Care Agency to be put in place

If ever you feel you are being abused in anyway please report it to your local Safeguarding Board which will be within you local Council,you can also report to police or Social Worker.

All Safeguarding Alerts are investigated .

Check your care plan and see if cleaning is included in you care package if it is and thay are not doing it is abuse and needs to be reported

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya..., I am so sorry to read what happened to you must have been so upsetting and I have read this before , some horrid people about how do they live with themselves. A very good reply from rose54, I hope being on the forum helps you to have a chat with others , a lot will have empathy living with constant pain each day and will totally relate to what you are saying, I’ve posted a link if you would like to lock your posts as then only our community can see and not o-en to any other site engines on the internet, take care x