So, I am really confused. After being referred to rheumatologist by the gp, I saw the physio attached to the team. Apparently, I'm a bit of a mystery!!! I have got to be referred back to my neurosurgeon as there were a few red flags. I have an appointment in 8 months time.
To avoid any more confusion, I have added this. I also have NF1 and because of this had to have 3 spinal operations between 2014-2015. This is why the rheumatologist team are referring back to Southampton. The 8 months is in hope this will happen prior to being seen again!
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Littlestar82
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Hi little star, I think it might be a good idea to go back to your gp and ask what they reported as you have a right to know as 8 months is a long time to wait and you don’t want to get stressed waiting and wondering what’s up as this could lead to a flare up and anxiety. Sending you hugs 🤗🤗🤗
To avoid any confusion, I also have NF1 and because of this had to have 3 spinal operations between 2014-2015. This is why the rheumatologist team are referring back to Southampton. The 8 months is in hope this will happen prior to being seen again!
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