Hi

[Biscuit1973]

Hi, I'm Chris. After years of unexplained illnesse, symptoms and breakdowns finally had diagnosis of fibromyalgia in 2015. Still trying to wrap my head around things and struggling with acceptance.

[Hidden]

Is it in writing Chris your diagnoses Is your medication ok plenty of members here to give you advise so ask away mate ok

[honeybug]

Hi Chris 😊🌿🌸🦋

Sorry you have FM and so young. It’s never easy to hear that you have a condition you don’t understand or know how you got it in the first place. You’ve come to the right place to get first hand data and experiences. Keep in mind that you are an individual and your experience will vary as does everyone’s with the general commonality of diagnostic criteria.

When you are able to accept it dealing with it should get easier.

Take care and best wishes.

😊🌸🌿🦋 🤗💕😘

[NanaTisme]

Hi Chris, it is hard to except but if you can, you will be able to think about what you need to do to cope and adjust things to your needs, pace yourself as this is soooo important, take care,

NanaT

[penny]

I’ve just been re-reading an article by the late, great Dr Lowe about his treatment of fibromyalgia with T3. This still hasn’t hit the mainstream yet. I’m not surprised as the diagnosis and treatment of hypothyroidism is a sad indictment of our medical ‘professionals’ in this country. Dr. Coimbra has been successfully treating MS and other autoimmune conditions with very high doses of Vit D for over 20 years and the MS community in this country knows nothing about it. We are woefully behind the times.

[KnackeredKaty in reply to penny]

Hi Penny, I was recently watching a video by Dr Lowe on You Tube but I fell asleep watching it (and that was in the morning) lol. 😁 I was amazed that evidence is there about T3 and yet doctors are still reluctant to prescribe it. Anti depressants also act as analgesia so I don't know why this research on T3 hasn't progressed.

[desquinn Partner Volunteer FMAUK Trustee in reply to penny]

Dr Lowes research has not been peer reviewed and is a hypothesis. fibro is not undiagnosed thyroid although its a differential diagnosis that should be ruled out.

re thyroid connection please read this: healthunlocked.com/fibromya...

From thyroid UK: "Thyroid UK does not subscribe to the opinion that everyone with these conditions has undiagnosed hypothyroidism."

I am also concerned about the numbers of people that are self prescribing treatments bought from ebay / amazon marketplace without involving their GP. This is something we could not advocate on here.

[Mdaisy]

Welcome to the FMAUK Community !

I can remember bring newly diagnosed and how I felt at that time too, so can completely understand. You should find lots of support from members here, so you've joined a great community to be able to talk openly with others about anything and everything.

The journey to acceptance can be a lengthy one as can learning to live with Fibromyalgia, however people often report reading posts and talking to others who understand helps you along the way.

As a newbie I've noticed your post isn't locked to this community only, so it can be found by Internet search engines. Locked posts often generate more replies from other members, if you want to lock this one please read the information in the post below;

healthunlocked.com/fibromya...

Look forward to chatting around the community

All the best

Emma

[KnackeredKaty]

Hi, I only started to give in to my diagnosis recently after being diagnosed a year ago. Any support or info you need I'm sure you will be able to get in our group. You are not alone.

[Sarahvit]

Hi Chris, I was diagnosed with fibromyalgia and CFS back in 94 and I still don’t have my brain 🧠 rapped around it either. I have joined research studies in hopes of finding a cure. I did my own research on my body without finding a cure. I’m in another research study from PatientsLikeMe web site who teamed up with DigitalMe where they draw blood every 4 months looking at different biomarkers and when ever you get a new diagnosis you let them know and the schedule another blood draw. Last diagnosis is achalasia. I also now know what is going on with this freaking annoying pain that comes and goes where it feels like something is going up into my diaphragm and gets stuck. This has been going on for years but when I mentioned it in passing I get brushed off. It is a little hiatal hernia. I have always said that fibromyalgia is a lonely disease which invites others illnesses to join the party. And over the years I have gained weird illnesses and diseases like neuropathy, thyroid cancer....🤔well had 3 goiters and hypothyroidism for 13yrs before hand and Hashimoto's joined in along the way, GERD, gastroperesis (which got dropped when the did a gastric emptying test using only OJ) was diagnosed when they used eggs 🍳 scrambled with OJ, Barrett’s esophagus, ulcerative colitis, interstitial cystitis, esophageal spasms, chronic renal insufficiency to name the ones I can think of right now. There is a stronge debate on fibromyalgia being an autoimmune disease. With my experience and the current doctors conducting the research say it is autoimmune. I’m sorry for rambling on here. I was a RN before I got sick so I was using my knowledge of the medical field in trying to rap my brain around it. Hugs 🤗