Big Toe

seventeen years ago I noticed a funny tingling of pain sensation In my big toe of my right foot that pain got worse and spread to my foot and leg The pain was there for about two months and buy this time I had had several appointment s. my GP then eventually to hospital, the pain by this time had travelled up my right leg and also had gone down my left leg and foot oAt the hospital I went to neurology which was a mistake as the doctor diagnosed me with restless leg syndromes and prescribed me with medication for the RLS Not long after this the consultant died So for five years I thought I had RLS and didn’t even know about Fibromyalgia As time went on the horrible pain had spread up my body down my arms and fingers After a long wait I got to see a rheumatologist and after the fourth visit and owing to have been misdiagnosed I finally got diagnosed At that appointment there was four consultants and I finally got the correct medication So it was a long trot until they got it correct,The pain clinic was a waist of time but I do have a councillor as I now have chronic Tinutus and Asthma too I use a wheeled walking frame and two sticks but can’t really walk with out pain ,I can not cook especially hot food and other bodily thinks are very difficult for me Most of my so called friends don’t want to spend time with me anymore To day it in one Life is Fu——- grim but hey I’m trying to be happy So that’s what fibromyalgia done to me a life of pain Thank you Emma for your recent utube post you got it in one I hope that now members who feel that Fibromyalgia is not that bad I hope my sad story helps you to understand what serious Chronic fibromyalgia really is Love and blessings to all members who read this post .

[honeybug]

Hi Cromedome

I can relate and empathize with your story.

I was so stressed out by having to be caregiver to 5 loved ones and a chronically ill dog taking care of everything bills appointments then dr/hospital visits being nurse mentor carpenter chauffeur errand girl shopper the person that listened to everyone else’s problems went to the aid of others etc. etc. etc... to notice when my fibromyalgia and the other 59 diagnoses flared or developed.

Then one day the pain was so great I saw a specialist and explained I hurt so bad that if I had an off switch I would disable it in the OFF position. That was the start of Celebrex and the explanation of how serious things were.

I did great on that Rx until my Internist stopped it. Then it became a tier III drug and nearly impossible to get now. So I rely on gabapentin but it doesn’t work 100%.

To all the nay sayers worldwide don’t judge us until you have been in our skin felt what we feel then and only then do you have the right to question us about our experiences!!!!!!!

So I support all FM suffers we aren’t crazy lazy or making excuses.

Sorry for the rant I wish you all the best. Take care.

😊🌸

[Hidden in reply to honeybug]

Thank you for your reply

[jimborck]

Oh how i can relate to this Cromedome,

8yrs ago i went to gp with a tingling and numbing sensation in my leg, got the usual blood tests done, as time whisked by, the hot sweats ,fatigue,fog,and especially the pain decided to join in,

luckily for me i was hospitalized with a different condition and while there had a bad flare up and i was seen by the neurologist ( there is only 1 man that covers the area i live in, and a 2yr waiting list)

Eventually after scans/prick tests /nerve tests was told i have FM, and started on lyrica, in the last 2 yrs ive felt that the tabs just dont do much, so got the usual " up the dosage" and now im maxed out on 600mg a day,

im now at the stage of playing the "i will ignore it game with my pain" up untill the time when it will get really bad, and i will end up in hospital again, as this is the only time anything really gets done about it,

I'm finally getting to see a rheumatologist so that gives me a little hope, maybe just maybe, something good can come out of it.

[Hidden in reply to jimborck]

Well I hope so Jimbrock I’m on lycra too I think the tinatass is my main bug Bair Soldier On as they say .

[Robto]

Hello Cromedome,

Sorry to read you're feeling so bad. Let's hope it's just a flare-up and will ease up soon.

And to whoever has your voodoo doll, please give it a rest.

Rob.

[Hidden in reply to Robto]

Yea some times I wish they would pull the pins out too 😂