Hello all, I was diagnosed in January this year, believed it was triggered by the death of my mother last summer. GP is great and seems well informed, was a big surprise to me. I have a loving partner and 4 children as well as working full time in a professional job.
Medication wise I started on Pregablin upon diagnosis, rapidly increased over 3 weeks due to the pain. the cold weather made it worse and was in bed for 3 days and seriously struggled, GP increased my medication to 300mg twice daily for the worst days and trying to get back down to 100mg twice daily - not being very successful so far.
Since diagnosis and starting medication I am significantly better and try to be positive, I see a physiotherapist regularly. With support from my employer I have been able to remain at work (flexible working).
really struggling this week, not just the pain - regularly waking at night as I try to move, my shoulder feel as though they are dislocating when I move them, and the burning in my arms suddenly flares up and is intolerable.
Does anyone else feel like this at times and has anyone advise on managing some of the symptoms better?