Permanent: I was diagnosed with... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Jimbo2487 profile image
9 Replies

I was diagnosed with Fibromyalgia 4 years ago..it’s been horrible.

I have been turned down for ill health pension twice now.

1. They all agree I have fibromyalgia

2. The assessor says it may NOT be PERMANENT.

I plan to appeal...has anyone got any advice re proving or disputing the issue of permanence.

Thank you in advance.

Jim

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Jimbo2487 profile image
Jimbo2487
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9 Replies
Jurph profile image
Jurph

That's crazy. Sure the NHS website should be enough?

theviv profile image
theviv

Hi Jim

I've had fibromyalgia for 25 years after multiple car accidents. I'm 50 years old and I became a disability advocate because of it . Had it not been for the commitment of my medical professionals I don't think I would still be on this earth.

You definitely need to have a psychiatric evaluation done in terms of how the fibromyalgia debilitated you beyond the physical component.

The sooner you can get into see a psychiatrist the better you will be to able to defend your disability

People who can make such a bold statement about us and our conditions don't have the mental capacity to understand the whole person rather just what they perceive as their own experience with pain.

That being said fibromyalgia is far more than the injury itself.

Good luck.

Curlysue223 profile image
Curlysue223

Hi Jim,same with me,been refused ill health retirement.Feel very let down by occ health dr,he suggested it.He basically said i could return to work before retirement age.I'm nearly 57,been off my nhs job for 15 month's.Nothings improved in that time,feel like you,making be very stressed.

Birds profile image
Birds

Hi I'm 63 l have not been able to work for nearly 5 years now and l can't get my pension eather good luck with your claim x

robpw profile image
robpw

How is it not permanent ? ...

Jimbo2487 profile image
Jimbo2487

I wish I knew??

Gwendolyne21 profile image
Gwendolyne21

Jumbo get your doctor to write a letter, he may charge you but it's worth it, from Gwen.

Kingdom1914 profile image
Kingdom1914

Never heard anyone say it's not permanent! It does usually get worse.

Sarahvit profile image
Sarahvit

Yes I do. My place of employment had me take 6 wks off and after that wanted a note from the doctor saying I was cured. He laughed and said there is no cure for fibromyalgia. It is a chronic condition. That was in 1994 as of today 2/17/18 there still isn’t a cure for fibromyalgia that I know of for man but God can heal people. Do you have an attorney who is specialized in disability claims. My attorney won my case with documents from work showing the effects of fibromyalgia had on me. I hope this helps you.

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