Newbee here

[Lynda1957]

Hi all,

So glad I found this site!

I suffer terribly with IBS but just put up with it because doctors just ignore you when you say you keep getting bad stomach ache, etc. Or put it down to the pills I’m on, Tramadol, Gabapentin, Diazepam etc. It’s like they are saying you can’t have one without the other. Was diagnosed with Fibromyalgia in 2012, would this affect my IBS, as had that longer than Fibromyalgia?

[YASMINTINA FMA UK Volunteer]

Hi Lynda glad you joined the forum you'll make lots of friends and find out so much from other members who like you have fibro and other conditions, have you found your ibs is worse with the meds ?? Just from my experience I found gapapentin did irritate my stomach, I would certainly go back and ask if there is anything else they can give you, if uve not a lot of faith in current doctor hopefully there is one at your surgery who might be more understanding it's worth a try. I managed to do that my surgery you want someone to listen not get fobbed off after all sometimes we have a long wait when docs are running late and we have to be patient I hear so many people who go in and come out feeling unhappy that their conditions haven't been heard or at least a change of meds. Good luck keep posting yasmintina xxx

[Lynda1957 in reply to YASMINTINA]

Doc gave me indigestion tablets! Now the Spinal Team have found a lesion on my brain, am beside myself in case it’s MS! Waiting on emergency appointment with Neurologist 😕

[Mdaisy in reply to Lynda1957]

So sorry to hear this on top of everything else .....do keep us posted how you get on with the appointment

[DanielleGemma]

Welcome to our wonderful forum hun

I would suggest having a quick look at our mothersite which has loads of useful information and links! fmauk.org/

I think that all of our members feel so lucky to have found the forum and it is so lovely to be able to speak to people who understand exactly what you are going through and can give you the support and help that sometimes you can't get elsewhere xxx

[Lynda1957 in reply to DanielleGemma]

Well, I have just had my PIP home assessment,( from High mobility and living on DLA) even though I was bed bound, and suffering back spasms, she went ahead. 1 and a half hours later, she finished!

I got so upset as I couldn’t even move to get comfortable, and every time I tried, the look on her face as I cried out in agony said it all really! She admitted to being a nurse, not a doctor, and I dread to think what she was writing ☹️ I just hope she was satisfied with my answers...now for the wait of 8-12 weeks apparently! God, I could 😢

[Mdaisy in reply to Lynda1957]

Hi Lynda1957

All this can be totally overwhelming and the stress can impact on any conditions we have, so I completely understand how you may be feeling at the moment. You should find the community a support network and for advice this should help you to deal with the ups and downs of living with Fibro.

I sincerely wish you get the answer you deserve in 8-12 weeks - try not to worry in the meantime to reduce the stress you may be experiencing

As a newbie I have noticed your post is unlocked, you may wish to lock it so it is kept between this community only. Members often are reluctant to reply to unlocked posts and therefore locking it will generate more replies too. Here's the link which explains how to do this;

healthunlocked.com/fibromya...

Hope to bump into you around the community

All the best

Emma