Fibro fighter

[Mustangmo]

I as sad received some horrible news but this is as usual about fibro. I am sleeping almost all of the daytime and know have CFS I am up late and likely feel the best I ever do, but a little late to do anything. I have tried going 24-48 hours up so I can change my body clock it works for 3 days and stops. Does anyone else suffer like this?

[tulips123]

Exactly the same. Using meds haven't helped. Every which way. Do you a deal (lol) if you find an answer let me know and vice versa. The screen makes my eyes worse which limits long nights' options! The Gremlins are out to get me, I swear! xx

[Mustangmo in reply to tulips123]

There are special glasses cheap they are dark glass to watch iPad or TV, I ALSO USE SUNGLASSES, TURN DOWN THE BRITNESS AND ALWAYS ( if you have an iPad use night reading Sorry for caps,

[tulips123 in reply to Mustangmo]

fantastic idea, thank you! xx

[Mustangmo in reply to tulips123]

I don't know if you can got old radio programs , we use to get the green hornet, the Shadow, if you can and have n iPad just listen to the programs, or you can get free audio who read a book to you, whey eyes go this is great. I save my free audios for this time. But dark glasses do help.

Peace profound

[Janet28]

Hi Mustangmo I'm afraid this is a major problem for people with Fibro. I'm exactly the same, I either sleep for England or can't sleep for days. It a nightmare. But I've kind of adjusted over the years & resigned myself to the fact that nothing will make me sleep if my body won't allow it lol.

Breathing and relaxation excersizes are very helpful because it can be very frustrating. Hope you get some rest tonight

Luv Jan xx

[Mustangmo in reply to Janet28]

Thank you it helps to know you are not alone, I am so impressed with this group, just wonderful. Hugs and peace profound.

[Janet28 in reply to Mustangmo]

I think that is a problem, you can feel so alone. Yes the group is brilliant, a wonderful bunch of people and I've learned more from the forum than I've ever learned from any medical professional. Hugs back my friend & glad you enjoy being here,

Luv Jan xx

[tulips123 in reply to Mustangmo]

best forum. we understand each other, care for each other. hugs always appreciated! wishing you a good night ! xx

[tulips123 in reply to Janet28]

i've decided to try a period of quietning - is that a word? - slowing everything down, turn everything off, deep breathing etc. take meds. 20 minutes later get in bed, see what happens. you never know, nothing to loose by trying. more than one night! xxxxxxxxx ? zzz?

[Janet28]

Ok tulips123 I' hope it works & yes it is a word, a strange one but it is one. It sounds like a good name for a movie haha xx

[TheAuthor]

Hi Mustangmo

I am so genuinely sorry to read this my friend, and I am a lifelong insomniac and struggle beyond belief to have a regular body clock! I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

[Mustangmo]

I am obese and should have thyroid , diabetes, bad cholesterol,

My blood work is every 2 month and perfect. A new doctor will do another test as he thinks something was wrong with dirsr.

[TheAuthor in reply to Mustangmo]

I want to truly wish you all the best of luck with your blood works. I does seem irrelevant when all the tests come back normal but they always think that way. Please take care my friend.

All my hopes and dreams for you

Ken

[Creativeness1]

Hi mustangmo

Just to let you know we are all here to support you.

You are not alone please keep sharing.

So we can all help you on your journey.

Good luck my friend: )

[Mustangmo in reply to Creativeness1]

Thank yo all so much, I am still in sad mood but is better every day, I just sleep and sleep. Sounds funny to say I am tired of it LOL

[Shatull]

Yes I also sleep lots daytime and night feels like I have sleeping sickness it's like there's no inbetween with fibro no sleep or to much I.v also just been diagnosed prolapsed discs lower spine and tabs they.v givn me making me sleep worse there is no happy in between harmony with this fibro x

[Mustangmo in reply to Shatull]

I am so sorry to hear of your problem, you must be suffering from both kinds of pain, I will be here if you feel like venting and I will get back to you as soon as I wake up . So far today have styed Awake as I had things to do and same tomorrow. Our Fibromgeoup meets once a month for lunch . This means I have gone out 2'dYs in a row, so will likely be in bed for at least 3 recuperating. So you fine this the same.

Take care Hugs And peace peofound

[Lifechanging]

Hi yes I suffer like this also I Can go months not being able to sleep at night then all of a sudden I sleep all day everyday and all night then I sleep all day and then awake all night .. I have tried lots of things to change this the only thing that has help is I take 1/2 of lorazepam at night and 50mg of Amitriptyline it has helped with the sleeping at night as I take both meds about an hour before I go to bed ... But I get weeks when I sleep all day as well I have so many other health issues as well so I never know which one is making me so exhausted all the time but when I'm sleeping I don't feel the pain as I don't have flare ups like people often say I have constant pain every day I never have good day they are all bad days ..

[Suegault]

Hi,im the same,no flares,pain every day,wondering if I've actually got fibro.

[suzey26j in reply to Suegault]

That's what. I was saying to my daughter the other day I'm the same ,never a day without pain ,,but i thought.everyone was like this ,I do get days when it's worse than others days, it's that what people mean . Suzey X