Fibromyalgia Action UK
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Hi I've been diagnosed with fibromyalgia since September last year I've had it for a long time but it's been diagnosed as other things.recently my legs have gotten worse I can't walk very well suddenly and my legs are in so much pain around my knees feel tight and are swollen I've started to nearly fall over is it time for a wheel chair I feel it's all getting worse.

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Hello! You have some of the symptoms I been dealing with. My knees have been in such pain that I literally screamed sitting and getting up.

I went to my doctor yesterday and found out I have arthritis in both knees. My doctor gave me a cortisone shot in each knee and it has worked wonders. I'm not sure how long this will last, but I will definitely get the shots again.


Hi Angellou

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

I have swelling in my knees but this is due to arthritis, Fibro is not officially an inflammatory illness? As for having a wheelchair, I think only you know when you are ready for something like this? My personal belief is that it is easier to get use to being in a wheelchair than it is to start smoking. I also believe it is easier to give up smoking than it is to get out of a wheelchair? So please think long and hard before making a decision my friend?

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you



Not sure about wheelchair they are good to have around when you really feel things are very bad but,its like most things you get to used to it and then you find you really cant do without it , how old are you do you mind me asking. Suzey x

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Hi Angelou, I am in a very similar situation. The two to three inches above my knees are really painfull trigger points for me. It's where the ligaments join my thigh muscle to the bone of the knee. I have found massaging magnesium oil into the area a couple of times a day helps relieve pain.

I have had a wheelchair for some time that my physio said I should use when he noticed how unsteady on my legs when dealing with a neck problem.

My pride, stubbornness and denial of my situation stopped me from using it. I regularly stumble and fall but cause no damage. In December though my knees just gave way and I face palmed the floor. I snapped three upper front teeth in half and after checking I hadn't broken my jaw they had to be removed. Front teeth roots go a long way back in the roof of the mouth.

So I guess I should have listened. But I still don't like it as I have to be pushed as a self propelled one causes flare up in wrists, shoulders and neck, hence another lack of independence. Secondly, some days I can walk short distances with my stick and don't want to be seen as a fraud.

Just my ramblings

Hope things work out for you


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Hi Angellou welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

I do suffer also with knees & feet & just about everything else lol, so I'm with you when you say you can hardly walk. I do hire a scooter if I know I have to walk, walking down one aisle of a supermarket is enough to put me in a flare & i come to a complete standstill & then panic how I'm going to get back to the car. I think it's difficult advise to give anyone & even doctors won't usually say to you to get one, obviously with fibro, the more active you stay, the better it is for you. Only you know when it's time and it does open up new doors because you can look round the shops again without being in agony on a good day.

Peace, luv n light

Jan xx

PS. I advise you to lock your post to keep info safe from internet. Pls. follow this link to simple instructions .You will get more replies on a locked post too.


Hi Angellou

Welcome to this great forum ask anything you want someone on here will get you a signpost/answer. There are funny posts laughter is good medicine!


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