Fibromyalgia Action UK
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Hello! This is my first post so here goes!

I was diagnosed with functional tremor in 2014, I also have chronic fatigue and fibromyalgia. I haven't been officially diagnosed with fibromyalgia but when I saw the neurologist he said it comes with functional tremor. I am wanting to get a official diagnosis as I have all the symptoms but it's not easy! I saw a GP about it and you know what he said - "you look fine to me!" I was really shocked! In 2014 I was in a wheelchair and was in rehab for 2 months learning to walk again. I am walking again now but still got a long way to go! I'm not having physio anymore as they say they can't do anything else! I am writing to the Dr I saw in 2014 but I wondered if anybody could give me any advice please? Thanks. Sorry this is long.

7 Replies

Oh dear what a pickle...Can you not go back to the Rheumatologist and request a confirmation and then show this to the doctor who said those words we all hate!! Can you find another doctor who will listen to you and understands Fibro....I wish you well and send gentle hugs....let us know how you get on please....x


Hey thanks for your reply. I am writing to the neurologist who I saw but the GP I saw was only a trial. We complained about him. Haven't thought about trying again though as decided to write then see what happens. I do wonder if there is a GP who knows about it x


Hay Em08

This is the NHS guidance for diagnosis, might be worth printing off and taking with you to see a GP. I am looking at forming some sort of lustre to describe possible symptoms, and a range of meds that might help. Problem is, NHS and GPs don't know as much as we do.

Love Hayesider xxx

Criteria for diagnosing fibromyalgia

For fibromyalgia to be diagnosed, certain criteria usually have to be met. The most widely used criteria for diagnosis are:

* you either have severe pain in three to six different areas of your body, or you have milder pain in seven or more different areas

* your symptoms have stayed at a similar level for at least three months

* no other reason for your symptoms has been found

The extent of the pain used to be assessed by applying gentle pressure to certain "tender points", where any pain is likely to be at its worst. However, this is less common nowadays.


Thank you that's useful 😀 X


Hi Em08

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK:

FMA UK can also send an information pack to your GP anonymously:

From *FMA UK

*If your GP/Medical Professional needs some education in Fibromyalgia, you can request that an FMA UK Medical Professionals Pack is sent out to them. All we need is the name of the Medical Professional and the address of their practice. We will then send a Pack to their surgery, addressed from us to them. This will not mention that you requested it for their attention.

I want to genuinely and sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you


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Hi. Thank you that would be brilliant and I don't care if they know it's me or not because they need to be aware of this!


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Good luck my friend :)

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