Help: Hi guys,just lying on the floor... - Fibromyalgia Acti...

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Peterpan1961 profile image
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Hi guys,just lying on the floor again at stupid oclock in the morning as pain wakes me up after 3 hrs if i'm lucky every night .was healthy and never had back pain in my life until 6months ago, steadely got worse and have not sat down or lie and back or sides for months .and now unable to walk or pick grand children up as they only 2 and 1 they seem to weigh 10 st as my back gives way. Had mri and countless visits to gps but consultant said nothing on scan and dismissed me (thanks) and thats private .gps just look at me like oh no he back and gives me sick note and stronger pills ( morphine ,tramadol,gabapenitin the list is endless and nothing touches pain.going back to hospital tomorrow for more injections in spine for facet joint blocks ? Hope it stops pain .however i'm not doctor but thats not finding out what the problem is .why do the medical people want to fond this out ? Thought i was the only person in the world witj so much pain in my back at times haha feeling sorry for myself .reading some of these post i feel better yous have been talking about YEARS 😣 still no better writing this post but just needed rant .

Thanks and hope everyone gets some relief soon 😊

Peter

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Peterpan1961
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17 Replies
TheAuthor profile image
TheAuthor

Hi Peterpan1961

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read of how poorly your back is, and I sincerely hope that you can find some resolution to the issue.

I have pasted you an excerpt and a link below to the *NHS Choices cache on back pain, so I sincerely hope that you find it useful:

*Treatments for long-term back pain

If you're worried about your back or your pain hasn't improved by around six weeks, it's a good idea to visit your GP, who can advise you about the treatments available.

These include:

stronger painkillers

exercise classes – where you are taught specific exercises to strengthen your muscles and improve your posture

manual therapy – such as physiotherapy, chiropractic or osteopathy

acupuncture

counselling – such as cognitive behavioural therapy (CBT)

support and advice at a specialist pain clinic

Some people choose to see a therapist for manual therapy or acupuncture without seeing their GP first. If you want to do this, you will usually need to pay for private treatment, which is likely to cost around £30-50 for each appointment.

Spinal surgery is usually only recommended when all else has failed

nhs.uk/Conditions/Back-pain...

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

Icenae profile image
Icenae

Hi. I would query the mri results again. Otherwise why are they giving you injections in your facet joints. They dont do that unless they can see deterioration. I know this as I have same pain as you altho more on weight bearing and have an acknowledged L4/5 sacro iliac facet joint deterioration. I had injections last year and they helped for a while. Which my consultant said indicated an op could help. Sounds as tho you have a bad spasm at mo. I found osteopathy, accupuncture and stretching exercises eased it a bit. But some days cant straighten up or lift anything, walking is exhausting. But do keep moving if you can. (. You can google exercises for facet joint pain) Mine is much worse after a sedentary day. I feel like my back is in a tight painful clamp

I think also problem with me is fibromyalgia makes you much more pain aware. But on the upside. Mine is getting a bit better now. Sometimes it needs to heal.

Also have you had your PSA prostate checked. Just a thought.

Hope its better very soon.

Peterpan1961 profile image
Peterpan1961 in reply toIcenae

Yeh cracking advice going to get him to double check mri as there is definatley something going on in my little back😞hope your problems get better and thanks for reply and advice.

Peter

dottydettie profile image
dottydettie

Hi Peter hope you get the help you need when you go back, I suffer back pain its part of the Fibromyalgia symptoms and no medication takes it away fully but I had this Actipatch recommended and its amazing the relief is instant...I don't know if it will work for you but its worth a try as chronic pain is hell on earth.....this is the link for the back one its on a different site and cheaper but Actipatch do a trial one on their site that lasts for 7 days it stays on once you switch it on and then stops after 7 days n you wear it continually.... the other one you can switch on and off ....hope this helps...

Edited By Admin

Bernadette

Peterpan1961 profile image
Peterpan1961 in reply todottydettie

Awwwww thanks Bernadette will def give it a try as you know we will try anything ,thanks again for reply and hope things keep going well for you .

Peter

Icenae profile image
Icenae in reply toPeterpan1961

Hi again. It might be worth a try but I tried it and it didnt do anything. I think its more effective for muscular and ligament pain rather than joint pain.

security profile image
security

Hello Peter, I feel you pain and frustration I have lower back pain for more years than I care to remember... it's osteoarthritis that I have and started after years of driving. I often use my tens machine to help relieve the muscular tension along with my medication.... sometimes your local hospital physiotherapy department will let you borrow a unit to try and help...... they're not too expensive to buy yourself if it's something you wish to purchase..... local chemists or on line from amazon.....

Best wishes in a speedy recovery my friend.

Peterpan1961 profile image
Peterpan1961 in reply tosecurity

Thanks for reply good advice i hope been a few people have told me this.will have to try thankyou again

Peter

Jen1112 profile image
Jen1112

Hi sorry that uve got back pain I know how u feel I've had to ops to release the nerve on my right side as had a proslape disc which still hasn't work can't have any more ops as I could lose the nerve in my right side so have to suffer with the prolapse my consultant can't understand why I'm getting so much pain in my left side but I'm now have been told it's fibro which is affecting other parts of my body please ask for another mri and ask consultant if it could be fibro good luck xx

Peterpan1961 profile image
Peterpan1961 in reply toJen1112

Awww thanks sorry you have had so much pain and suffering but will take your advice

Peter

Multijo profile image
Multijo

So sorry for your pain!! Not pleasant at all.

I didn't want to take any narcotic med at all. I haven't always been able to stick to that but doing pretty well. Not everything works for everyone but these work for me

Exercise with direction of PT

Chiropractic

Meditation (need some relief first so you can develop skills) and deep breathing

Cold laser therapy works best for me Takes some time to get enough of it but it is wonderful

Stretching Again a good professional trainer or PT can teach you

Accupuncture not as effective for me as for others

Good luck and I wish for you lovely pain free rest

Jo

Hartleyhare2 profile image
Hartleyhare2

Sounds like there is a trapped nerve in there somewhere Peter. The MRI must show something otherwise how would they know where to place the injections?

I know what it's like. I spent a year in therapy with a lower back injury from a bad parachute landing in my younger days. I ended having three bulging discs removed by key hole surgery which changed me overnight.

The best two exercises I remember 1 - lay on your back, bring your knees up so you can brag just below knee and rock very gently backwards and forward, gently stretching 2- turn over and lay on the floor flat face down. Keep your hips downwards flat on the floor all the time. Then gently push your arms up so your torso rises but hips and legs don't.

This obviously is for a lower back problem and is just what worked for me, their should be no pain just gentle stretching, chat to a physio if you have any doubts or can't get of the floor. I also had lots of tens machine and hot tub, bath was no good as I couldn't get in or out.

Hope you get release soon

Patrick

Peterpan1961 profile image
Peterpan1961 in reply toHartleyhare2

Thanks for reply Patrick.its a funny one this as been going to physio for about 10 times and he said its not doing me any good until the problem gets sorted 🙄mmmm have not tried your excersises but will tonight trouble is the pain is that bad sometimes no way i could do them .push it to open pain killers ha will see what these injections do tonight . But still have no clue what the sourse of problem think he just wants to numb my back and legs and get rid of me. Got doc app in morning and going make them help me .and good question i should throw at her and where to go next 🤔good to hear you feeling good

Thanks again

Peter

Hartleyhare2 profile image
Hartleyhare2 in reply toPeterpan1961

Thanks Peter, one concern I have is that the body flags up pain for a reason, so you slow down and rest it. Sometimes if I am in pain I take my morphine and carry on, the next day bedridden in agony and wonder why!

The injections will hopefully work but as you are well aware they are only masking the problem whatever it may be.

Hopefully you will be pain free later! Do let us know how you got on.

Regards Patrick

Peterpan1961 profile image
Peterpan1961 in reply toHartleyhare2

Thanks Patrick will do🙄

peck profile image
peck

Hi Peterpan1961 , Welcome to our forum!! It sounds like you have been given some strong meds and to still have all this pain is not good.I wish you the very best in finding something to ease it.Taje care. Peck.🐤

Peterpan1961 profile image
Peterpan1961

Thanks Peck just letting off steam helps

Cheers Peter

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