desperate now

In desperation I have contacted the pm at the surgery with a request to see the most senior gp as it was him who after two years investigated finally my abdominal problems and began to investigate my pelvic problems which didnt proceed as a change in circumstances.dont hold out any hope as request to see my previous gp declined

[fenbadger]

I don't know what the rules are but I hope your request is accepted and you get some progress. xx

[Hidden in reply to fenbadger]

thank you fenbadger.it was always patients choice who they saw-they made a rule that i would tell the dr everything that was concerning me/symptoms and dr would address them which hasnt happened on 5 occasions-not acknowledged/recognised why i saw him.

[Hidden in reply to fenbadger]

i dont know about rules-they claimed they were "expectations" but their practice values state

This practice aims to provide the highest quality health care available under the NHS to all its patients with a well trained and motivated primary health care team.

The practice recognises the special expertise of many of its members and uses these skills for the benefit of the patients.

The practice values

Patients' medical conditions will be managed according to the highest standards as defined by the profession.

Patients will be treated with courtesy and consideration by all our staff.

Patients will receive appropriate information about their condition and treatment.

in my eyes -they havent conformed to any of these "values" especially because they still persist in assuming i have things i dont and what i do have is dismissed and that they can get away with saying what they have-definitely not courteous.

[fenbadger in reply to Hidden]

there's always "wiggle room". I believe all gp practices have to make some sort of statement. Who is going to say in public "we wont actually take any notice of the patient?"

[Hidden in reply to fenbadger]

it may not be said "in public"but i have not been "taken notice of "on too many occasions.my gp told me last time "its not my job to treat you"??its that sort of comment and others that do nothing to regain any trust in them

[fenbadger in reply to Hidden]

quite.

[luppilu]

You are entitled to a second opinion....best way is to put the request in writing to the pm....

Another way is to make an emergency appt to see a duty doctor on a day when you gp doesnt work

Best of luck

Love n cyber hugs

Lolly

Ps you need to lock this post or it will be all over internet

[Hidden]

i ve done that.sent her an email.how do i lock my posts?

[Kitten-kat23]

I am so sorry, I truly hope you can get the help you need.

[Hidden in reply to Kitten-kat23]

thank you Kitten-kat.I took my dog out this morning she wasnt keen to go and just walked local streets.I only walked about 80 yards when pain kicked in.and had to stop,if i dont hear back from the pm today.guess ill need to ask for an appt with the gp i have which i know will be a waste of two hours of my time.

[Kitten-kat23 in reply to Hidden]

I truly hope everything goes your way.

[Hidden]

thanks ,so do i .still no reply from the surgery as yet

[TheAuthor]

I want to genuinely and sincerely wish you all the best of luck!

[Hidden]

feeling worse tonight-nausea,more pressure on ribs/stomach.more sore and lumpy and excruciating pain on left side abdo.headpain and swelling not eased all day

[Hidden]

woke this morning to the same if not worse symptoms,not heard from the surgery-should i contact the pm again?

to Luppilu-my gp doesnt seem to have any "days off"-none that are shown online only when on holiday,

[Bambamsnan]

I hope you get to senior gp ☺

[Steve49]

Hi dolphin33.

I'm so so sorry for you currently !!!!

Do you want me to offer you some help & advise !!!!

If yes then can you please offer me some more info so that I can look into it for you !!!!

Steve.

[Hidden in reply to Steve49]

what do you want to know?any advice /help greatly appreciated

[Steve49]

Hi.

Thanks.

Did you want provide me with the GP practice you are having problems with ???

Sorry both do you want me to look in to the practice for you ????

Is this they way that you want to go down ???

Sorry for more questions I'm just trying to get a picture off things !!!!

Please let me know ???

Steve.

[Hidden in reply to Steve49]

i need time to think.i have wished for and do feel i would like some intervention from a third party but not sure if its the route to go down.could only make matters worse?

can you explain what you mean exactly b y "looking into the practice"?sorry if i sound "thick"-head is in a turmoil as well as the pain and swelling.

[Steve49 in reply to Hidden]

Hi.

Sorry no I don't want to rock the boat for shall we give all a knock on the head ??

I will leave it with you but "please please" don't get worry.

Let's start from the beginning if you want.

Please please let me know how you feel.

Don't worry about before that has been whiped clear now completely !!!!

Steve.

[Hidden in reply to Steve49]

have you read my profile-story.i posted it recently to give those who dont know the saga an idea of whats been going on.?

still no contact from the pm.i have contacted two other depts to complain about the gp's attitude.lack of support and failure to carry out their duty-provide care for the patient.waiting to hear back.not holding out too much hope there if any,

if the pm doesnt reply then include that

[Hidden in reply to Hidden]

Dolphin, did you ever get round to checking out your haemoglobin results from the various blood tests you have a record of? If they have been consistently at the low end or lower than normal it would possibly be worth your while asking to be checked,and it's nothing special just a full blood test,to see if there is any likelihood of your having thessanemia,otherwise known as Mediterranean anemia.given your Mediterranean heritage it's a possible explanation of all these vaque type symptoms you say you have.If it hasn't been low then no point in persueing it cos it won't be that condition. Even if it's a possible culprit you will only have the minor or intermediate type which is NOT the same as having the desease,it means you carry the gene,the trait and may experience these various vagueories of symptoms.baiscally the only helpful treatment as such,is folic acid which I believe you have now been advised to take anyway.the important thing to know to rule in or out,is if you do carry the gene taking iron supplements may not be a good idea and in some cases would be a pretty bad idea,unless you also have straight forward low iron running alongside it,and since you are now taking those it could be worth knowing? Stress again tho if your haemoglobin is not low,it will not apply- so then disregard.it will not explain pelvic pain,but the mesh from your op + prolapse is possible cause.rib lump and pain ache from that likely down to the scoliosis,digestive issue likely down to the hiatus hernia you are treated for. Hardest job in the world for any doc is trying to deferenciate all the issues,but from what you have said before they really do seem to have run the full set of diagnostic scans,scopes etc for those things and come up negative for the major stuff.can understand your ongoing concerns that you feel trying to get given an answer but sometimes there just isn't one to cover all.the various ailments you have been diagnosed with all give their individual aches,pain and niggles so it's coming at you from a few different angles!! Maybe the thalassemia could be adding those others into the mix?? I dunno,just a thought.

[Hidden in reply to Hidden]

sorry it totally slipped my m ind.will try and go thru my notes tomorrow,

had qiuck read thru of your reply-the main issue which has always been is them not accepting weight gain as abdominal and nothing to do with diet.its what ive not been diagnosed with because of the original assumption of IBS when never presented with symptoms and confirmed i dont have it,they still bring it up as reason for huge abdo and keep giving me diet sheets.my weight is only what it has become because of my "abdominal mass".now dismissing dizziness and headswelling/pain.

[Hidden in reply to Hidden]

Abdominal mass means cancer- which you have had the all clear on- sorry it's probably me but I just don't understand - I Thought head swelling and pain was your main current issue and the 1 thing that hasn't been explored by the GP.Anyway, here's hoping you get some satisfaction from somewhere.

[Hidden in reply to Hidden]

interesting you suggest it could be genes.my pelvic pain started 4 years ago-before i had the mesh inserted and not even acknowledged til early 2015.my own gp when i first presented with it just said "its not your stomach".i remember his comments so well.the GP who began investigating my abdominal issues and pelvic pain referred me to physio but thats as far as it went.since then noone has acknowledged it until a few weeks ago and even then all i got asked was "how do you know its swollen?"and that was it,the pain feels deep in the bone -which is a sign of Pagets,Made the dr aware of lump in rib last month and only acknowledged last monday when the on call gp came out.since the start my abdomen has been sore and lumpy and for the first two years all my own gp said was "i cant feel anything" .again it was the other gp who investigated.i think it is diverticulitis and dysphagia playing up.it could explain the sore/lumps in my abdomen and dysphagia -from food getting stuck in my oesophagus or the hernia.Diverticulitis can cause loose stools -not diarrheoa-

and the pain in areas i have it.

they still dont get that any weight gain is abdominal and not general -apart from lower leg swelling-most likely fluid leaking from Bakers cysts-another thing my GP claimed "not to know what they were".

since June not one thing (new symptoms)i presented with have been acknowledged,physically examined/investigated/treated-dizziness,headpain and swelling,cholesterol/bloods/cold left foot,further facial swelling and increase in pelvic pain.

i wouldnt describe them as "niggles" as persistent from the time i get up .

blood results are as follows-taken from gp notes;-

october 2011 dec 2011

MCHC 31 32,7

MCHL 26.8 28.1

HAEMATOCRIT .389 .358

HAEMOGLOBIN 12.1

sept 2012 JULY 2013

MCHC 33.7 32.5

RBC 4.19 4.56

MCHL 30.8 29.2

H'CRIT .381 .403

DEC 2013 JULY 2014

MCHC 32.1 34.3

MCHL 29.2 30.8

HAEMOG 12.9 12.3

H/CRIT .402 .386

RBC 4.41

AUG 2014 JAN 2015

MCHC 32.2 33.6

HAEMOG 28,.7 HAEMO C 13.7

H/CRIT .404 ..407

RBC 4.53 4,7

MCHL 29.1

FEB 2015

HAEMO C 13.5

H/CRIT .416

RB C 47.5

MCHL 28.5

MCHC 32.6

[Hidden in reply to Hidden]

soppysal

if this is confusing,its cos i typed them in in separate months but accumulated two sets of figures in one.

headpain and swelling worse today.

searched it on NHS WEBSITE =Behcets came up.

symptoms include

Blood clots develop inside vessels that run though the channels located between the inner and outer layers of the brain-increasing pressure inside the skull.also severe headache-a band of pain-loss of balance,loss of hearing,

doesnt correspond to other symptoms-abdominal conditions but does cause loss of appetite.i just had a hearing test which confirmed some hearing loss.

felt quite faint/heady when walking my dog.my headpain is a persistent band of pain across the top of my forehead.

it could answer for a lot of my symptoms

it also stated it can cause physical and mental problems-affect ability to perform any activity

[Hidden in reply to Hidden]

again, only in mho but it doesnt seem to correlate to the main symptoms of Bechets at all and can only say if it were me,I would discount that as well.Glad you took the advice to get the hearing test done, its amazing how the gradual hearing loss creeps up on most of us without us realising. I just got me some hearing aids,how depressing this getting older lark!, but have to admit things a much clearer now haha.

[Hidden in reply to Hidden]

i am just trying to find reasons why my skull is swollen/headpain.i have been telling gp's for long time,I cant understand "accents"or hear "quietly-spoken "people and cant hear people talking to me in the street due to (traffic)noise and only if they are looking at me.

i know hearing loss comes with age but it could be linked to another condition.no one in my family-parents-aunts-uncles had /have hearing problems and none of my friends my age do.

[Hidden in reply to Hidden]

I had exactly the same with my hearing, but fought to the last to avoid any help with it,eating humble pie now though,it is much better for things to sound clearer- and I was only diagnosed as having MILD hearing loss mainly of higher sounds,so god help those poor souls who really suffer with bad hearing. If you had the test they will have explained to you which sounds and ranges you are having trouble with mostly.That type of hearing loss is associated with just normal ageing,losing the tones and range, most desease hearing loss is of a different type unfortunately.

[tracynoe in reply to Hidden]

Bechets is very rare for more information you need to go to the vasculitis uk website they can give advice, also if it were bechets a lot of your blood test would be out of range even if your gp didnt know what was wrong your esr would be sky high ulcers is a huge thing with this disease

[Hidden in reply to tracynoe]

ill take a look at that,if not then what is causing my head to swell and the constant band of pain i have on m y forehead plus everything else undiagnosed because gp's fail to acknowledge what i tell then the problem is?

[Hidden in reply to Hidden]

Hi dolphin, surely tho if it were along the lines of bechets/ chron's or u.colitis (all similar ish) evidence would have shown up on the colonoscopy that you have had.unless extremely mild with no flare ups ( unlikely) then the ulceration in colon & bowel would have shown and in a flare up its excruciating pain.

[Hidden in reply to Hidden]

hi soppysal

the 'oscopies i had were almost two years ago,a lot has changed since then -including increased abdomen,complete loss of appetite,abdomen is a lot more "lumpy" and extremely sore plus had excruciating stabs of pain on my lower left abdomen.dont know if you remember or know that i was back and forth to my gp over two years and all i got was "its your stomach" "im not having anything to do with your stomach"etc,

it was a different gp who arranged the endoscopies which revealed my abdo conditions and proved gp wrong .who knows if they ve worsened-except me-and gp doesnt acknowledge my symptoms.only seeing a gastroenterologist will see if anything more going on/worsening.

[Hidden in reply to Hidden]

Hi Dolphin. IMHO with those results it doesnt appear that it would be thessanemia although no ranges there they look well within the normal ranges and would be skewed if it were there,so personally I would disregard it.

That was the only condition that I was meaning would be a genetic condition,which it is.I wasn't for one moment suggesting that any of the other things you mention could be from a genetic cause.

[Hidden in reply to Hidden]

i know you werent,just commenting on your comments.i didnt post the ranges -they were within range but a couple at low end of range.

[Hidden]

If it was cancer i would have lost a lot of weight and wouldnt be here now,it could be a huge cyst-accounts for the weight i have gained.i think Diverticulitis is playing a huge part-the soreness and lumpiness and rectal bleeding.

yes it is and when i told the gp my skull was swollen and persistent headpain-he didnt even acknowledge it.pelvic pain is on the same scale

there have been man y stories of women having huge abdomens-cysts tumours and scans not detecting them

[Hidden]

i am feeling worse today.took my dog out-feeling faint-headpain/swelling and pressure against stomach.-cannot do anything-tried reading-head fuzzy,.too scared to take Annie out again.