Fibromyalgia and other illness.......

[martha41]

Hi 1St time posting.......

I was wondering if anyone has been diagnosed with fibromyalgia and 6 mths-12 mths later to be also to be diagnosed with functional neurological disorder which it had lost my speech an power around different parts around my body which not only does the fibromyalgia carry a lot of pain and suffering and now I'm told that the functional neurological disorder also causes the body pain......

[Hidden]

Hi

I'm very sorry to hear of your problems.

I was diagnosed about 2 years ago after having symptoms for years, I have not hear of what you've been told you now have.

My thoughts are with you at this difficult time.

Good luck and best wishes.

[martha41 in reply to Hidden]

Hi Fibropop 1St you give me a little giggle with your post name so thank you for the giggle xx Also thank you for your time and interest....

[Scottish-piglet]

I was told at the same time I was diagnosed with Fibro that I also had functional neurological disorder, consultant at hospital told me to go home and Google it as she didn't know enough about it to give me any advice.

[Sorebones in reply to Scottish-piglet]

Really?? How bad is that?? Was it a neurologist who diagnosed both? Sorry, asking too many questions again 😳🐸

[Scottish-piglet in reply to Sorebones]

Yes it was a neurologist, they claim because it's to do with the wiring in your brain going haywire and it's not something they can "sort" then there's nothing they can do for you but apparently it's only a temporary thing that only lasts a couple of months. I've had it for two years now and still no improvement.

[martha41 in reply to Scottish-piglet]

Hi Scottish-Piglett sounds like the neurologist you were seeing was as a great help for you as I would have thought that it was there job to be updated with anything that's to do with the brain which fibromyalgia is a totally different illness though it can mimic 1 of another as I don't know about other people but it can also mimic MS...... Have you lost any functionality in your body....xx

[peck]

Hi and welcome to our lovely site.Ive never heard if this happening..

maybe someone will come along that can help.Take care. Peck.🐤

[martha41 in reply to peck]

Thank you for kindness......

[peck in reply to martha41]

Your very welcome!! I'm from the US but love your pic with the British Flag!!Have a good day.Peck🐤

[Sorebones]

Wow! Sorry to hear that you have so much to put up with! I haven't heard of that before. It's one of the things I love about this forum, that there is so much information.

Are you being treated by a neurologist for both? The neurological disorder sounds scary. Have you had it for a while or has it been undiagnosed for a long time? Asking too many questions, sorry 🐸

[martha41 in reply to Sorebones]

Hi please feel free to ask any questions as if you don't ask you. Don't find things out x I don't see any neurologist at all now as they showed very little interest in my condition all I was offered was a speech therapist which she had done a few tests which was called the white noise which involved playing a loud music and for me to read words so really what it was to see if I could speak without hearing myself but It didn't work I was also offered physio 4 times a week I live at least 35-40 miles from hospital I was to be able to get there myself and by this time I was wheelchair accessible????

[BlueMermaid3]

Hi martha41

Welcome to the forum

You have found a wonderful place to come for advice, support and help. Everyone on the forum is incredibly kind, caring and compassionate.

Have a look at our mother site for more information on Fibromyalgia fmauk.org

Please may I suggest that you get into the habit of locking your posts? Unlocked posts are open to the whole world, whereas locked posts stay within our community. Here is a link on how to lock your post, but if you need any help just give me a shout:

healthunlocked.com/fibromya...

I have had Fibromyalgia, Chronic Fatigue, etc etc for over 30 years, but we have newly diagnosed people too and everything in between.

There are a wide range of ages here from very young to the more mature people like me 😊

If you need any help navigating the forum just give me or anyone in Admin a shout and we'll be very happy to help you.

Wishing you less pain and more peace

Lu x

Admin

[martha41 in reply to BlueMermaid3]

Thank you for you all xxx

[TheAuthor]

Hi martha41

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have never been diagnosed with FND but i have pasted the *Google definition below and I am sure many members will be able to relate to this description:

*Functional neurological disorder (FND) is a condition in which patients experience neurological symptoms such as weakness, movement disorders, sensory symptoms and blackouts. The brain of a patient with Functional Neurological Disorder is structurally normal, but functions incorrectly.

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

[Wavelength]

Hi, I was diagnosed with Functional Disorder by the neurologist and then six months later I was diagnosed with FMS by the rheumatologist. I can not find out what the difference is between the two. Do you know?

Thank you Wavelength