Introduction

[Heather-Gaia]

Hi,

I,m from Tasmania and have been diagnosed with fibromyalgia, chronic fatigue and acute,chronic chemical hypersensetivity.

I struggle with this as my allergies prevent me from taking most of the meds that are commonly used in the control of these conditions. The worst of this is being unable to take any pain meds except paracetamol.

I would welcome any help with management of my pain that anyone can suggest.

[BlueMermaid3]

Hello there

Welcome to our lovely forum I am sure that once you have locked your post you will get more replies. If your post is not locked this means that absolutely anyone who goes onto the internet will be able to see your post and all of the replies that you receive.

If you lock your post only the first couple of hundred characters will be on the open internet, so it is a good idea to start your post with something like 'I hope you are all as well as you can be today .....'

Please do not give out any personal details, even if your post is locked or you are replying to a locked post.

If you reply to an unlocked post your reply will be able to be seen on the internet. Locked posts have a padlock next to them.

If you would like me to lock this post for you, please let me know, and I will do it for you.

Ok. That's the boring stuff done

If you would like to have a look at our mother site you will find lots of interesting information fmauk.org

Please feel free to join in with anything that is being discussed and fire away with any questions you would like to ask.

I hope lots of my fellow fibromites will come along with suggestions to help ease your pain. It's cold in the UK at the moment so I find that my best friend is my electric blanket I don't know if you can get hold of the Art Therapy books where you are. If you scroll down and have a look at Fibrofoggiest's posts, you will see what I mean. Colouring can concentrate the mind away from the pain.

I have had Fibromyalgia and various other chronic conditions for over 34 years and have been a member of the forum for 4 years. In the time I have been here, I have made some truly wonderful friendships.

I look forward to seeing you around the forum. I have written below instructions on how to lock posts, and how to lock posts that have already been put up.

Wishing you calmness and peace

Lu xx

Volunteer Admin

[BlueMermaid3]

Please see below some (hopefully!) clear instructions on how to lock your posts:

If you have any other queries please let me know and I will be happy to try to help

To lock a post when you've finished writing it scroll down to the bottom of the blue box and you'll see on the left hand side two options:

o Everyone

o Community

If you click on the Community option, this will then lock your post.

If you want to lock a post that you have already put up onto the forum, find your post and again scroll to the bottom of the blue box. You'll see a small downward arrow (v). Click on that and you will get an Edit option. Click on edit and then select the Community button as above.

Lu xx

Volunteer Admin

[TheAuthor]

Welcome to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry that you are suffering and struggling so much with your Fibro and I sincerely hope that you can find some resolution to these issues.

I use a TENS Machine that I find very useful. I also undertake a daily physio routine of gentle exercises which I also find useful. I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Oldbones]

So sorry to hear you can't tolerate any medications. I had to give up all my meds when I wanted to get pregnant so have tried lots of alternative options with good success.

I also use physio and what they call range of movement stretching exercises which help. Here are a few ideas as different things work for different people...... tens machine, physio, stretches, yoga (esp hot yoga as the heat helped my sore muscles), relaxation apps on my phone/iPad, hot baths (with Epson salts), hot showers, massage (but insist that they be very gentle or you'll feel more pain), anything to improve your sleep (new pillows, I actually bought a new matress with a memory foam topper - made such a difference!), diffene gel to rub into muscle for aches really helps me so worth a try if you can't take any strong pain killers, swimming in a heated pool and use steam rooms, sauna, jacuzzi etc anything that heats the muscles and relaxes them. I have a collection of heat pads that you can microwave or some you plug in. Heat plasters that you stick to your skin and they heat up and stay warm for hours. A friend of mine swears by using turmeric spice and making what she calls a golden paste (Google and you'll find recipe) as she hated taking medication and found it helped her. I can't vouch as haven't tried it yet.

If you can only take parecetemol a nurse helped me after I had my son. As I was trying to breastfeed and didn't want to start back on the strong meds again. She said once you get any pain under control keep taking parecetemol every 4 hours even if you feel you don't need to it keeps the pain at bay. I was very sceptical but it did work. Actually there's another thought maybe pain patches or a pain suppository might help you if you can't take medications orally. Sounds awful but worked for me.

Anyway best of luck to you and hope you find some relief. The forum members here are really helpful so if you have any questions just ask.