Don't know what to do : Had ct scan... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Don't know what to do

Jafii profile image
8 Replies

Had ct scan,ultra sound fine blood test report was fine but this side pain still make me hurt

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Jafii
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8 Replies
Maria1958 profile image
Maria1958

Hi I know its soul destroying I had scans 3 weeks ago for pain in my stomach and side they said my liver kidneys ete were all fine but iam still in pain they just leave it at that at the minuite iam just crying a lot and I've never in my life been a cryer feel so stupid my friend who is a nurse says its because I've came off tramadol because side effects awfull we just don't know were to turn iam sorry you are having a bad time what would we do without each other to talk to take care my friend 😕

Jafii profile image
Jafii in reply to Maria1958

I don't know what they do why they take so long time to get appointments after I take amitriptyline 10 mg tablet had bed reaction side effects may be that the reason of my pain but my gp said just take pain killers wait for surgeon appointment what did u do for ur pain relief she give me paracetamol and bascopen 😢😢

Jafii profile image
Jafii in reply to Maria1958

What did u for ur side pain relief

TheAuthor profile image
TheAuthor

I am so genuinely sorry to read this and I have left you a message on your other post. if your pain persists or gets any worse please ring the NHS 111 number and seek medical advice. Please take care of yourself my friend.

All my hopes and dreams for you

Ken

Jafii profile image
Jafii in reply to TheAuthor

Yes I will call 111 today if my pain go worst in night becuase gp only give pain killers they said they can't do anything before the bowel result comes thanks pray for me

Regnofibro1 profile image
Regnofibro1

I hope you feel better soon. I had pain in upper left side docs told me it was because of my IBS. Apparently I was hum backed up so to speak.

MattyJ profile image
MattyJ

Hi there.

I was in the same situation 5 years ago. I was experiencing pain usually focussed on my left side. Over 4 years I had a couple of MRI scans, referrals to different neurologists, physiotherapists and so many blood tests that I felt like a pin cushion. I was started on 10mg of Amitriptyline and this was increased to 100mg. It was only after 4 yeas I saw a neurologist who diagnosed fibromyalgia, whilst he gave me a diagnosis he was extremely unhelpful and dismissive.

The good news is that since then I researched and found a specialist near me, went to my GP armed with the name and asked to be referred. I was seen by him in May last year and that resulted in a referral to a sleep clinic, appointments for pain management and a change in my medication to Gabapentin.

Things have improved and whilst the pain is still there and it sometimes is a lot worse and sometimes much better; I feel that I have more knowledge, control and support. This website is excellent for not feeling isolated. It is hard work and it does require a lot of pushing doctors to keep referring you and research. Keep at it and you will hopefully get some results.

Jafii profile image
Jafii in reply to MattyJ

Thank you hope it's helpful for me 😢wake up with pain sleep with pains it's horrible 😢hope to get some good result when I see surgeon next Thursday finger crossed😥

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