Lichen planus: Hi not posted in a long... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,884 members67,015 posts

Lichen planus

louda profile image
5 Replies

Hi not posted in a long long time! Just wondering if anyone also has lichen planus? Just been told I may have this as well as my fibro and diabetes life's interesting to say the least.

Written by
louda profile image
louda
To view profiles and participate in discussions please or .
5 Replies
TheAuthor profile image
TheAuthor

I am so genuinely sorry to read that you are suffering with this and I have pasted you a link to the NHS Choices cache on this condition:

nhs.uk/conditions/lichen-pl...

I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

kimbles profile image
kimbles

yes I have had it twice. I think I was very unlucky....I wont sugar coat it ..its awful I had it all over my body even on my eyes. GP gave me creams and lotions which did help eventually as it took a while for them to diagnose.

I think at the time it was pretty severe. My body calmed down eventually although I still have to use the wash and cream as soap products really irritate it.

I also found temperature change particularly heat made it worse.

my mum had it too which is rare as its not hereditary.

I hope you that yours wasn't as bad an experience as mine and the medicine gives you some relief.

.

fenbadger profile image
fenbadger

You have my sympathy. I suppose it's no comfort there's no apparent link to either condition. Look at Ken's link. I was going to post the same one. Good luck

louda profile image
louda

Thankyou for your replies the worse thing about this is I have it in my mouth,scalp and ....well..... I find a bag of frozen peas to sit on gives relief to the other place I have it!! I assure my daughter when she comes for dinner that they are not second hand!!!!!!! My scalp bothers me the most as my hair is falling out dramaticaly but I find a good sense of humour is the only way to cope....there are some nice wigs out there so I can be Dolly Parton on Mondays and maybe Janet Streetporter on Tuesday's .......gentle hugs to all....x

TheAuthor profile image
TheAuthor in reply to louda

Please take care of yourself x

Not what you're looking for?

You may also like...

Lichen Planus

Does anyone also suffer with Lichen Planus along with the fibro doctors are changing me from...

Pemphigus Vulgaris or Lichen Planus

Morning. Hope you lovely people with a wealth of knowledge are as well as can be. Sorry in...

An interminable ramble and lichen planus

It,s half three in the morning and I am having a cup of tea. An hour ago I finished up all the...

Lichen Plantus

Hi everyone, I was just diagnosed with lichen plantus. Is there anyone else out there that has it?...

MY APPEAL FOR ESA

Well that's my appeal letter posted today , 1st class AND TO SIGH FOR , just to make sure they get...