Support Groups: Have anyone been to a... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Support Groups

skit profile image
skit
8 Replies

Have anyone been to a physical support group ?

Being on line can lead you to group attending do you think?

Doing something different this new year then? try meeting up with others for a cuppa or actually get to a Fibro Action group near you maybe?

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skit profile image
skit
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8 Replies
Fibromepainless profile image
Fibromepainless

For the Admin Team ! Scit , I think your right,

TheAuthor profile image
TheAuthor

Hi skit

I sincerely hope that you are feeling as well as you possibly can be today? I have not personally been to a support group of any kind but I have heard some good feed back about them.

I have pasted below the FMA UK support group link and hopefully there will be something in your area:

fmauk.org/contactsmenu/supp...

I want to genuinely and sincerely wish you all the best of luck if you decide to give this a try?

All my hopes and dreams for you

Ken

Fibromepainless profile image
Fibromepainless in reply to TheAuthor

Thank You ken :-)

Peace2014 profile image
Peace2014

i attend a support group. It is nice to be with others that understand. It is only once a month but it is my new family as they actually understand and don't tell me it is all in my mind.

skit profile image
skit in reply to Peace2014

Peace 2014 I think everyone is different. The fact that groups exist and continue to have new people wanting to try a groups says something? I wish you all the best for you and your 'fibro family'

bourne profile image
bourne

If you feel ok then yes please go to a support group , just keep an open mind and enjoy the company and chatt. Its so good to know that people understand and you will find this group of people very helpfull with the knowledge they have gained with learning to live with fibro I wish you all the best and look forward to seeing how you get on angela

ukmsmi4 profile image
ukmsmi4

It's a nice idea but sadly I couldn't manage it. If I could drive, if I had the energy to cope with going out like that, if I could cope with two hours of sitting in pub chairs and being in that sort of environment (that seems to be the sort of place our local groups meet) then frankly there are many other things that come first on the list that I would prioritise over that. Like doing a better job of looking after my health and getting some exercise etc.

I know getting out and about and meeting people can have benefits but with the ME and fibro I just don't have the energy to cope with it. I also find there is too much sensory stimulation for me in situations like that. What with the energy involved and the time taken and the preparation and recovery time required, frankly I'd rather go for an occasional massage or something. It's a bit of a catch 22 that when you really need that sort of thing, you're just too ill to cope with it.

Personally I would cope better with just meeting up with a small group of very local fellow ME/fibro people on an as and when basis and going for a coffee or sitting in a park and getting some fresh air but sadly I haven't been able to find anyone who is willing to do that.

I guess it depends on how you are and what you personally can cope with. Also what the alternative are in your area. If you are thinking about it though I would suggest you give it a go. Most such groups tend to do a free taster session.

Margaret.xx

skit profile image
skit in reply to ukmsmi4

hi

If you are keen for a meeting in your area why not advertise on a community noticeboard?

Also if pubs are not your thing(they are not for everyone including me) contact local group and see if there are people near to you that can meet for a cuppa. Not two hours worth unless you have more than more than one cup!!

going out is good for fatigue ,yes you have to pace yourself as always.

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