Diagnosis Confirmed

Hi all been member of community for a while but had diagnosis confirmed yesterday. So i dont feel a fraud now.

The consultant was fabulous full of information even new about my other autoimmune disease primary biliary cirrhosis

It was so overwhelming i forgot to ask anout treatments and follow up but he advised that letter will go to drs advising them of my diagnosis and new meds he wants to perscibe.

Can anyone fill in the missing gaps many thanks in advance

KAREN XX

12 Replies

oldest β€’ newest
  • Hi Karen and welcome properly to the forum 😊

    Isn't it a relieve when you finally get the right diagnosis ? The madness you thought you were in lifts and even though you still feel rubbish, you can at least know that you're not mad and that others will understand you and empathise completely with what you're going through.

    You might find it useful to look at our mother site fmauk.org where you will find masses of information and hopefully some of the answers to the questions you forgot to ask, and perhaps even more 😊

    You are lucky to have such a good consultant and I hope that your GP will be as understanding and help you with the medication side of things. Do keep us informed of how you get on and I much look forward to getting to know you better around the forum !

    Sending you lots of positive healing vibes 😊

    Foggy x

  • Thank you Foggy for the warm welcome i am going to return to work next week wish me luck xx

  • Good luck and hope it goes well at work πŸ‘πŸ»πŸ‘πŸ»πŸ˜ƒπŸ˜ƒπŸ˜ƒ

  • Just sending welcome wishes to you Karen x gentle hugs

  • welcome properly to the forum karen

  • Hello Karen

    Welcome to the forum :)

    You asked about filling in the gaps. I'm guessing you mean what treatments there are for Fibromyalgia?

    Unfortunately there are no straightforward treatments for Fibro that work for everyone.

    Some of the things that you could ask your GP to refer you for are: CBT (Cognitive Behavioural Therapy), Pain Management Clinic, Pain Clinic, Physiotherapy and hydrotherapy (if it is available in the area that you live). That's all that I can think of off the top of my head.

    You may wish to have a discussion with your GP about what pain medications you can be prescribed, dependant upon how much pain you have. Unfortunately it can take quite a long time to get the right set of meds that work for you. Because Fibro presents itself in very different way in each patient, what works for me may not suit you at all.

    In general your Consultant will discharge you back to the care of your GP without the need for any follow ups.

    I hope some of tihs helps.

    All the very best.

    Lu x

  • Thank you Lu i will await the drs letter then I was under pain clinic and received treatment but unfortunately it didnt help much fingers crossed with meds xx

  • I am so delighted to read that you have at last got a diagnosis, albeit I am so sorry that it is Fibro. There are so many medication options for Fibro that it is difficult to know what he may suggest? To work in conjunction with drugs there are the options of counselling, physiotherapy and alternative treatments such as acupuncture. I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken x

  • Hi Karen welcome to our wonderful club , foggy given brill advise , as has lu , I did a pain and fatigue clinic and it would help more with your understanding of what's happening to your body ,and teaching you exceptance , how meds work for some but maybe not for others , it's also wonderful with pacing and respect and teaching family members how to help you , and themselves, also the spoon theory is helpful ,

    But the best thing that's been said to me is ,

    Be kind and gentle with yourself ,

    Hugs Chris X

  • !st time for me with spoon theory. Brilliantly simple and easy to grasp that its not just what you can do, but also what you cannot do.

  • Glad it helped 😊

You may also like...