Fibromyalgia

Hi everyone.

I have had fibro for many years now and was never given the right kind of meds to help me deal with it better so I could cope so I changed doctors and finally I feel like I'm getting the help I need, even if every visit results in having yet another blood test. I have just recently been told that I have M.E. (Chronic Fatigue Syndrome) and I don't know about anyone else, I find it extremely difficult to concentrate, get tired very easily and fall asleep on a bad day and not realise I have done so. I am waiting till I've see the specialist for the M.E. then apply once again for the P.I.P.S. benefit as I need a car just to get about but wouldn't be able to afford one or even run on without some sort of money as I can't work at the moment because I don't go out on my own for fear of falling.

If any of you kind Fibromites out there have succeeded in gaining P.I.P.S. I would be glad of any help you could give me. I've rang FMA UK benefits helpline but because it is run by volunteers, who I appreciate suffer also, there's no-one there until Monday 16/11/15.

3 Replies

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  • Hi, it's hard getting the right balance, but as a fellow sufferer I understand how you feel. If you can get to your local job centre they will give you all the phone numbers you need as it is the DWP who will send the paper work to apply for pip. It can seem a long process as they may want to assess you. Why not keep a diary so you can answer the questions on the form, just be honest and tell them how bad days affect you. Whatever you do don't lose hope, it just takes time. Good luck 👍

  • Hi there 😃

    I hope I can be of assistance with regards to your PIP application, if you just scroll down through the posts below yours and come to one titled Home PIP Assessment you will see several replies but keep looking down until you come to three long answers from our lovely Shadows-walker. She has gone in great detail how you should approach any application for PIP and I don't think you will really find much better advice, but here also is a link to another benefits website which you might also find useful benefitsandwork.co.uk

    Sending lots of positive healing vibes your way and very good wishes for your PIP application. 😊😊

    Foggy x

  • I am so genuinely sorry to read this and I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

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