Does this sound like fibro?

Hi all, I was wondering if you could help me as I'm so fed up and I think you're the best people to ask! I'm 27 years old and 2 and a half months ago I started getting breast pain, I went to a breast specialist and they said my breasts were normal. A few weeks later the pain spread to my upper back and ribs and I got a tight chest (which comes and goes). Over the coming weeks it spread to my arms, armpits,legs, joints and I even get electric shocks (mostly in my face, but all over) and even occasional pain in my face (mainly chin and cheekbone) as well as my skull. I've had a spine and breast MRI and all my blood tests have been normal. My pain isn't awful and it's not all at once but it's just always somewhere- stabbing or throbbing and it scares me. A couple of doctors have said it's fibro but lyrica and Cymbalta didn't help. Other doctors think I need more tests- the only thing is, I live abroad and I can't afford any more tests as I've spent a fortune. Plus they seem to have ruled out everything serious. I've seen a rhumatologist, neurologist, oncologist, breast doctor and a GP. Does this sound like fibro? I'm so scared and I would really really really appreciate your help.

8 Replies

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  • Sorry you are going through all this, not always easy to say what is wrong.

    Can I suggest you look at Dr Sara Myhill web site, might help.

    Free to look at web site . Gentle hugs

  • Thank you, I shall take a look :)

  • I am so genuinely sorry to read that you are suffering and struggling in this way, and I sincerely hope that you can find some resolution to these issues. Usually a Rheumatologist (but not always) is the person to diagnose) Fibro. I was wondering if it was the Rheumatologist who said Fibro to you?

    It can a while to get a firm diagnosis as many members on here will verify. I am so sorry that I cannot help with any good suggestions but I want to gneuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

  • It was actually a Neurologist who gave me the initial diagnosis. Since then I've seen one Rheumatologist who thinks I have it and one Rheumatologist who doesn't as I don't really have specific tender points and she thinks I need more tests. I don't suppose you could tell me if it's possible for tender points to come and go? For instance, they'll press somewhere and say 'does it hurt?' and I always say 'well no, but sometimes it hurts there'. I've never felt so ridiculous in all my life, I think they think that I'm mad. I even saw one doctor smirk at the nurse while I was listing my symptoms. Even if this isn't Fibro, I have the utmost respect for the poor people that suffer from it. Thanks so much for the reply!

  • Hi again,

    I would think that tender points could be more or less tender on a daily basis? I know that I do not hurt in the same place every day, and some days a certain place may hurt more or less than the day before?

    I really think this is the problem with Fibro, in that it is almost impossible to describe it to somebody who does not suffer with it such as a doctor or a rheumatologist.

    I want to genuinely wish you all the best of luck.

    Ken

  • Hi i thought fibromyalgia was mainly diagnosed by the symptoms and tender points....my mom (always perfect) scored a 18/18 on tender points. ..perfect not always the best outcome.

    Keep going to as many people as offered as being diagnosed will make sure you get right medication. Good luck

  • Thank you and yes I think that is sound advice. I will keep looking for a diagnosis. It's annoying because now every doctor I see just agrees that it's fibromyalgia despite the lack of tender points. Thanks for taking the time to reply!

  • the thing with it is that it effects people differently in many varied ways as we are all different i can be ok till push then get pains like say using taps if hand slips hurt like hell where used to be rough n ready for anything.

    Pressure point pains can vary as things like your hormones change and other things so can pains when i was on Tgels(Testosterone) my pressure point pains was through the roof couldn't touch arms/under ribs etc.

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