Log in
Fibromyalgia Action UK
41,459 members53,555 posts

Does this sound like fibro?

Hi all, I was wondering if you could help me as I'm so fed up and I think you're the best people to ask! I'm 27 years old and 2 and a half months ago I started getting breast pain, I went to a breast specialist and they said my breasts were normal. A few weeks later the pain spread to my upper back and ribs and I got a tight chest (which comes and goes). Over the coming weeks it spread to my arms, armpits,legs, joints and I even get electric shocks (mostly in my face, but all over) and even occasional pain in my face (mainly chin and cheekbone) as well as my skull. I've had a spine and breast MRI and all my blood tests have been normal. My pain isn't awful and it's not all at once but it's just always somewhere- stabbing or throbbing and it scares me. A couple of doctors have said it's fibro but lyrica and Cymbalta didn't help. Other doctors think I need more tests- the only thing is, I live abroad and I can't afford any more tests as I've spent a fortune. Plus they seem to have ruled out everything serious. I've seen a rhumatologist, neurologist, oncologist, breast doctor and a GP. Does this sound like fibro? I'm so scared and I would really really really appreciate your help.

8 Replies
oldestnewest

Sorry you are going through all this, not always easy to say what is wrong.

Can I suggest you look at Dr Sara Myhill web site, might help.

Free to look at web site . Gentle hugs

1 like
Reply

Thank you, I shall take a look :)

1 like
Reply

I am so genuinely sorry to read that you are suffering and struggling in this way, and I sincerely hope that you can find some resolution to these issues. Usually a Rheumatologist (but not always) is the person to diagnose) Fibro. I was wondering if it was the Rheumatologist who said Fibro to you?

It can a while to get a firm diagnosis as many members on here will verify. I am so sorry that I cannot help with any good suggestions but I want to gneuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

Reply

It was actually a Neurologist who gave me the initial diagnosis. Since then I've seen one Rheumatologist who thinks I have it and one Rheumatologist who doesn't as I don't really have specific tender points and she thinks I need more tests. I don't suppose you could tell me if it's possible for tender points to come and go? For instance, they'll press somewhere and say 'does it hurt?' and I always say 'well no, but sometimes it hurts there'. I've never felt so ridiculous in all my life, I think they think that I'm mad. I even saw one doctor smirk at the nurse while I was listing my symptoms. Even if this isn't Fibro, I have the utmost respect for the poor people that suffer from it. Thanks so much for the reply!

1 like
Reply

Hi again,

I would think that tender points could be more or less tender on a daily basis? I know that I do not hurt in the same place every day, and some days a certain place may hurt more or less than the day before?

I really think this is the problem with Fibro, in that it is almost impossible to describe it to somebody who does not suffer with it such as a doctor or a rheumatologist.

I want to genuinely wish you all the best of luck.

Ken

Reply

Hi i thought fibromyalgia was mainly diagnosed by the symptoms and tender points....my mom (always perfect) scored a 18/18 on tender points. ..perfect not always the best outcome.

Keep going to as many people as offered as being diagnosed will make sure you get right medication. Good luck

Reply

Thank you and yes I think that is sound advice. I will keep looking for a diagnosis. It's annoying because now every doctor I see just agrees that it's fibromyalgia despite the lack of tender points. Thanks for taking the time to reply!

Reply

the thing with it is that it effects people differently in many varied ways as we are all different i can be ok till push then get pains like say using taps if hand slips hurt like hell where used to be rough n ready for anything.

Pressure point pains can vary as things like your hormones change and other things so can pains when i was on Tgels(Testosterone) my pressure point pains was through the roof couldn't touch arms/under ribs etc.

1 like
Reply

You may also like...