The American Institute of Medicine report on redefining ME/CFS. Might be of interest in fibro as there is so much cross-over.

[Whippetlover]

I cried when I read the first draft of this report because it represents the first real shift in understanding of CFS/ME which I was diagnosed with prior to being diagnosed with Fibro. They suggest a different definition which some on the US blog that I subscribe to don't like and some do. Personally I don't care what the condition that has taken my whole life away from me is called because that is not what is important about the report. The importance is in how thoroughly the report has investigated the latest research and the fundamental shift in attitude to this illness. They have finally caught on to just how debilitating it is!

The link will direct to a website where you can download a copy of the report. You can either sign up or download it as a guest. It's pretty straightforward I think.

Please can I ask that if you don't like anything about the report including the new name they suggest - don't direct it to me. I'm only posting this to try to help. I would suggest that if you have the energy and you are in the UK, you send a copy to NICE or SIGN if you are in Scotland. Or our dear Minister for Health or decision makers at DWP.

iom.edu/Reports/2015/ME-CFS...

[TheAuthor]

Thank you so much for sharing this, it was very interesting. I must admit that I like the name, it sounds more legit? If you know what I mean?

All my hopes and dreams for you

Ken

[Hidden in reply to TheAuthor]

heheheeh I agree with you Ken

CFS sounds like a company which sells sofas LOL

[Aurorasparkle]

Very interesting thanks for posting xx

[Hidden]

I found this to be this to be a very interesting read, thankyou for sharing it with us.

I admit that I fit the criteria for CFS and SEID whichever they name it so it doesn't bother me either

Healing fluffies for you {{{{{ Whippetlover }}}}}

xxx sian

[queen-of-bedlam]

thanks for the info!

[digger1]

hi have read some of this i am in scotland mind tired lol couldnt find where to sign,

[Whippetlover in reply to digger1]

Hi digger, there isn't anything to sign. It's just for information and I am suggesting emailing a copy or the link to your MP and/or SIGN as you are in Scotland (me too!) who are the organisation that write treatment guidelines for Scotland. Just google them and you should get an email address. When I find it, I'll post a link.