Pain management consultant

[Robbie2057]

Well yesterday finally went to pain management clinic only to be told there is no such thing as fibromyalgia. What a joke.

[Hidden]

I was shocked when I went to the Adult Memory hospital. When i tried to discuss fibro fog with him he changed the subject fast.

[Robbie2057 in reply to Hidden]

I just could not believe what I was hearing. I was told that since my heart as attack I had just become more aware of any little twinge that I was feeling.

They have recommended that I go for group therapy.

[Hidden in reply to Robbie2057]

I was shocked that an expert in adult memory problems appeared to know nothing abut fibro fog.

Different doctor next time and im taking printed information with me.

[lou60]

I assume you were diagnosed by specialists, you will always come across this attitude, there are thousands of us so whatever it is we've all got it xx

[Hidden]

I went through you have fibro / oh no you haven't / oh yes you have at pain clinic with different health care professionals on the same day (who had the same information)

It was like a pantomime

Final diagnosis was the same as my Gp I suffer from fibro

Sorry but I don't have faith in the medical professions knowledge of fibro

Regards

[Ellejm]

I wonder how many people diagnosed with this wicked illness would say there's no such thing, I've had the same crap from my useless gp, I haven't got the energy for the pain clinic or anything, it's easier to sleep...

I'm a strong person, mentally, ex care kid who's suvived on my own always, since age 16 I've lived on my own, raised my 4 children alone, have fought life hard...this illness though has got me, hit me hard, and has ripped my life apart, I had it all sorted and set up own home, lovely kids until 2009 when I started getting really unwell which started with back issues..

For example on a Sunday I used to be very busy before 2009, I'd get up at 5am to get the kids dressed and we'd go to car boot sale number one, 9am car boot number two..we'd leave there are 1pm and drive to McDonald's, then unload car at home then at 2:30 we'd drive to tescos and get all the bargains reduced and at 5pm we'd head home..we'd be whacked out but I'd still have energy to put kids in bath and bed...

But now I can't get round even one car boot, I used to love them, I haven't been in over 3 years, now on a Sunday my kids look after themselves, I get brought up a cuppa maybe get downstairs for an hour or so but that's all....

Who would choose this, the illness makes us depressed, who wouldn't be..I've read that this illness is more painful than most types of arthritis and I know there's nothing I can do to change this, I've tried, and pushed myself to the point of tears...

You all watch, give it a couple of years and some new research will show what we all know already...keep going all of you x

[Chimbelina in reply to Ellejm]

Be proud of all you've achieved. I've also had a tough life, in a different way and think that the years of being strong and coping in extreme circumstances can be one of the triggers for Fybro as your body is always on the alert with the fight/response finely tuned, to the point wher your body can no longer switch it off. The nerves become damaged and so we have all the pain symptoms. Well done for being a fighter for you children. Keep strong. 😊

[mattoid-mags]

Well said Ellejm, wishing you well, Mags x

[Robbie2057 in reply to mattoid-mags]

Very well said. And you are right to say who would choose this way to live, you just wouldn't.

Thank you all for your support I did not know where to turn this morning.

Thank you.

[dovetail]

Hi Robbie2057,

I'm afraid I can't give you any advice but I can tell you that this post has shocked me to the core! How insulting to you & everyone of us with this nasty, unrelenting illness! How can people who are totally ignorant to our pain be working in such a capacity?! I'm so sorry you have been treated like this but please rest assured, there are thousands upon thousands of us worldwide with the SAME symptoms, so how can it not be real?! This has annoyed me greatly & I think if I was in your position, I would not think twice about complaining about this LOUDLY, but I know how difficult this can be when you've already used up all your precious energy. You are entitled to a second opinion, which I was granted myself recently, when a consultant I saw at a Pain Management Clinic behaved as if my symptoms could not possibly be as bad as I said & proceeded to try & cut my medication levels in half! I went straight back to my GP, (who is brilliant) & she arranged for me to see another Pain Consultant at a private hospital, which is still payed for by the NHS.

I have since seen the new consultant, who is respectful & very aware of fibromyalgia & it's accociated symptoms. I had a nerve block injection for calcific tendonitis last week, which he performed himself & I've already received my follow-up appointment. It does take a lot of effort to complain about your treatment but, in my experience, it has been worth it! Please don't give up!

Best wishes & gentle hugs,

Tracey.

[magnetta]

WHATTTTTTTTTTTT? That is ridiculous!!!!!x

[Hidden]

I was in a group in pain clinic last December when we were told our pain was in our heads. I am usually not a one to speak up but the young girl sitting next to me started to cry and this infuriated me so much. I shouted that I wished they could change places with any of us as they would not cope with the pain we have to endure on a daily basis and before they can comment on it being all in the head they should learn about what people have to endure. I said I for one was completely fed up with health professionals lack of education. The chap that said the comment blushed and apologised to us all. Makes me so angry. Grrrrr! Joolz.x

[Robbie2057 in reply to Hidden]

It does seem that I have struck a chord with a lot of people.

[TheAuthor]

WOW! I am not sure how to answer that? Our mother site FibroAction does have printable sheets that you could take with you to your next appointment if you wanted to? I have pasted you a link below to the site:

fibroaction.org

[teddybear7]

When you go to see a consultant here you see one of a team. So it can be someone different each time. One sent me to a pain clinic. When I got the pre appointment questionnaire who's first question was how many times a day do you want to commit suicide another consultant threw the appointment in the bin. !!

[J4xx]

I was shocked when I read this, but not Surprised............ My rheumatologist is very nice...but everything I have is because of ' fibro'...which is certainly frustrating, but at least she accepts 'fibro' exists!! My GP is great, very understanding, but no where near enough time to speak to me in any depth!

I've given up caring what anyone else thinks, but my one fault is I try to hard and will not be beaten, even now after 12 years I will do something, enjoy it throughly and suffer like hell afterwards and think 'oh yeah... fibro' .

Anyhow, you know what you have, and yes is it frustrating beyond words when a 'medical' person doesn't accept it .....but one day.... we all cant be wrong !

keep your chin up

Jx