pre internet fibro.: I thank god that... - Fibromyalgia Acti...

Fibromyalgia Action UK

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pre internet fibro.

madddyyy profile image
12 Replies

I thank god that at least i have access to the internet at speeds fast enuff i can basically watch any tv program or film or book magazine ever made, Youtube on my account has 4500 hours per year watched inc into that movies off netflix, pirated ahem content like usa tv shows and magazines to distract my pain then yes i do thank god for fibre optic cable. in the pre net days to have fibro must have been bloody awful. books and radio. spose though you can not miss whats not there but at least todays internet is a pain sufferes dream.

andy

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madddyyy profile image
madddyyy
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12 Replies
fenbadger profile image
fenbadger

I agree entirely. I can do so much from my seat. It's not so much entertainment as keeping in touch and finding out things. I'm aware there's a lot of garbage out there too. I'm selective about what I look at. I trust NHS.UK more than mr.angry.fromtunbridge.com. It's not always that obvious. HU and in particular fibro is great. The boys and girls are mostly loopy but kind, compassionate and knowledgeable. Sometimes things you don't get at home. :) :)

and what a help internet shopping is. along with mp3 downloads :) :)

Mdaisy profile image
Mdaisy in reply tofenbadger

Hello Fenbadger,

You make a good point about the internet and what you read especially about Fibro. There are so called miracle cures and information that maybe should not be considered as accurate, please be careful & maybe don't believe all you read!

There is lots of research out there, if you are interested about learning a little bit about research here's some information;

healthunlocked.com/fibroact.......

Unsure about research you read, here's a booklet which has helpful hints;

senseaboutscience.org/resou...

FibroAction has the Information Standard certificate to ensure that the information we produce is clear, accurate, balanced, evidence-based and up-to-date. Please see link;

theinformationstandard.org/

Please look out for these logo's around the internet (NHS etc)!

Best Wishes

Emma :)

FibroAction Administrator

fenbadger profile image
fenbadger in reply toMdaisy

Thanks Emma. I'm already converted. There's a journalists saying, "never let the truth get in the way of a good story" and no dealer has a real interest in a cure, if that happened a ready source of income would dry up!!

Thanks for the links

Paul :)

in reply tofenbadger

Big YAY! to internet shopping :D

My trainers will come today first new pair in 9yrs :) :p :)

fenbadger profile image
fenbadger in reply to

Scattercash :P :P

in reply tofenbadger

huh!?! phrase I don't know :o

Need new trainers for when i go to see podiatrist in10 days time as the others are old and battered no point getting inserts for them ;) got to have time to break the new ones in too :o

Colegg profile image
Colegg

I have only been on here a few days and it has helped me no end

Mdaisy profile image
Mdaisy in reply toColegg

That's good to hear Colegg :)

TheAuthor profile image
TheAuthor

Hi madddyyy

I sincerely hope that you are as well as can be? I agree with you as the internet is a marvel of technology that has now, 'forever changed the world around us'. Did you see on the news last week that BT has tested the fastest ever broadband speed of over 40 terra-quads per second? This is equivalent to all the movies on sky each and every second. Unfortunately, we will not get access to this kind of download speed for at least a decade!

Mind you, Mdaisy does make a very valid point that there is a lot of stuff on the internet that we all should really steer clear of!

Take care

Ken

madddyyy profile image
madddyyy in reply toTheAuthor

tes there is a lot of rubbish, but lots of good. I have written a number of books about the internet and magazine and tv, i have even worked with NHS andd US army using advanced internet speeds and software for treatment. I actually use one fprm of this were we cab have 100 people in any enviroment and teach or council, very unique and proven to help certain conditions.

Well Madddyyy can't disagree with you there because without the net we wouldn't have this site ;)

:) xxxsianxxx :)

One of my doctors looked a bit iffy when I mentioned the internet, I told him not to worry and that I would not be falling for quack cures. After all if there was a cure nobody would have fibro .I also pointed out that anything new that I had read I always verified on at least two brittish medical web sites before even starting to believe it. He seemed happier with that sue

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