Fibromyalgia Action UK

Fibro/Thyroid/Cortisol....not sure if linkes

Hi All

I was diagnosed with Fibro last year after a long battle to get my "sympotms" taken seriously by the GP etc. I am feeling more positive and better about the whole thing since I started taking Fluoxetine (amatriptalyne was a big no no for me!) but I still can't seem to lose weight (I don't eat a whole lot and what I do eat isn't crappy food) and still get symptoms that I think are linked to thyroid.

Would it be worthwhile trying to get my new GP, who has been great with supporting me with Fibro, to do more tests? When I had them done initially they were "in range" but my cortisol was high on the blood test but then "to the high end of normal" in the 24h urine test.

As all of you know, it's hard enough to get them to listen when you are first experiencing symptoms but now I'm worried I'll be seen as a pest as I've had a diagnosis!

Thanks in advance for any advice.

2 Replies

I have had underactive thyroid since I was 15 and fibro for the past 2 years. I find it hard to filter out what's fibro and what's thyroid symptoms. From what I've read they are often the same or very similar. For me though I know I was functioning well with my thyroid medicated and under control for 20 years, so there was no reason why my fibro symptoms, from my perspective, should be confused with thyroid symptoms.... Although that didn't stop the GPs trying to tell me my pain and fatigue was thyroid related.... or alternatively all in my head.

What are the symptoms that you still get and do you think they're fibro or thyroid?

I know weight gain is a supposed symptom of underactive thryoid. I've been a little overweight, though never a lot, for significant parts of my teenage and adult life but I have also lost weight periodically, including more than a stone recently. So I'd say you can manage your weight with changes in diet and exercise without worrying too much about the medical causes of your weight gain. In terms of weight gain, I think you can overcome it. I don't think underactive thyroid necessarily equals fat. That's not been my experience.

As for pestering the doctors, go ahead. They are there to help us. It can't hurt to ask.

Hope you feel better soon.

1 like

Hi Apple4me - thank you for your reply and my apologies for not responding sooner. I've been in bed for the past week, totally wiped out with pain all over and total exhaustion....the plug has been pulled! I too have always been a little overweight but the past two years my weight has gradually increased (even though calorie consumption has reduced). I also get many other symptoms which I never had before feeling ill such as dry skin, thinner hair, boils, bad healing (I've had bruises in my legs for 8 months), dry eyes, feeling of a lump in my throat that burns an awful lot and makes swallowing hard, what I can only describe as "static" noises in my ears, swelling and very swollen stomach and I could go on.....I just want to know that I'm getting to the bottom of what's going on.

Sorry for ranting on....I hope things are ok with you!

Best wishes x


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