To day I decided to change the word c... - Fibromyalgia Acti...

Fibromyalgia Action UK

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To day I decided to change the word cycle.

bourne profile image
15 Replies

I like to think of it as we are great at being Fibro surfers, on the sea waves, it made me smile, I hope it brings a smile to all you great surfers out there.

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bourne profile image
bourne
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15 Replies
Izumi profile image
Izumi

'Fibro surfer' explains how I feel. It is early days but this describes just how I feel.

bourne profile image
bourne in reply to Izumi

I am learning every day, keeping a dairy is very help full. waves is the perfect word good luck Fibro friend

Ginsing profile image
Ginsing

Fibro Waves or surfer I like waves I can wave it goodbye or lets its waves gently be bolstered, the waves are high the waves are low I like it as an acronym what do you think xxgins

bourne profile image
bourne in reply to Ginsing

waves is perfect. it would it be great to get lots of people on board with this, take care Fibro friend

Izumi profile image
Izumi

Waves reminds me too much of how the symptoms hit in waves. Fibro surfer makes me think of riding on the crest of the wave with hope in my heart and a smile on my face!

Ginsing profile image
Ginsing

I agree surfer is good bold and encourageing

bourne profile image
bourne in reply to Ginsing

so right, you have cheered me up

Izumi profile image
Izumi

A 'Fibro Surfer' does sound fun! Good title for a fund raiser to raise awareness.

bourne profile image
bourne in reply to Izumi

great idea

Izumi profile image
Izumi

Ooh Noo! I have no ideas!! Only feelings. Come on you guys, suggestions please!!

Mdaisy profile image
Mdaisy

My idea would it would make a good book called FibroSurfer. If we all anonymously gave our stories for FibroSurfer No 1 etc, one per page and our recommendations for others after the story. I find it is easier to read snippets with Fibro - reading others stories, how they deal with it and tips to help would be FAB. Would Raise Awareness, help people with Fibro, Proceeds from the book to charity . it would be a good book !

bourne profile image
bourne in reply to Mdaisy

it would be a great book

wallflower_fairy profile image
wallflower_fairy

Good word of description. Because even the best surfers fall occasionally.

Emma, that's a good idea. :) xx

bourne profile image
bourne

so true so true

Izumi profile image
Izumi

With fibrfoggiest contributing her cute pictures on each page. Keep it light and fun but maybe a little information on each page. A bit like thought for the day.

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